ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2019
Advancing the use of patient-reported outcomes in practice: understanding challenges, opportunities, and the potential of health information technology.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
34 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Pooled it
- Patient reported outcomes in oncology: changing perspectives-a systematic review.Health and quality of life outcomes · 2022Pooled it
- Evaluating a web-based personalized decision report for total knee or hip replacement: Lessons learned from patients.Journal of evaluation in clinical practice · 2023Trial
- Implementing custom PRO and NPS tools in private practice: balancing simplicity and clinical value in a retrospective study.Journal of patient-reported outcomes · 2026Article
- Advancing the Implementation of Patient-Centered Outcomes in Rehabilitation Learning Health Systems: Insights From the 2024 LeaRRn Summit.Archives of physical medicine and rehabilitation · 2026Article
- Comparing patient-reported symptoms and structured clinician documentation in electronic health records.Journal of the American Medical Informatics Association : JAMIA · 2025Article
- Article
- Developing a shortened spine functional index (SFI-10) for patients with sub-acute/chronic spinal disorders: a cross-sectional study.BMC musculoskeletal disorders · 2024Article
- Development of a communication platform for patients with head and neck cancer for effective information delivery and improvement of doctor-patient relationship: application of treatment journey-based service blueprint.BMC medical informatics and decision making · 2024Review
- Using bookmarking methods with orthopedic clinicians and patients with fractures produces score interpretation labels for patient-reported outcome measures.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Establishing severity levels for patient-reported measures of functional communication, participation, and perceived cognitive function for adults with acquired cognitive and language disorders.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Big Data in Oncology Nursing Research: State of the Science.Seminars in oncology nursing · 2023Review
- One report, multiple aims: orthopedic surgeons vary how they use patient-reported outcomes with patients.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Facing the challenges of PROM implementation in Dutch dialysis care: Patients' and professionals' perspectives.PloS one · 2023Article
- The implementation, use and impact of patient reported outcome measures in value-based healthcare programmes: A scoping review.PloS one · 2023Article
- Implementing an Electronic Patient-Reported Outcome and Decision Support Tool in Early Intervention.Applied clinical informatics · 2023Article
- Association of Function, Symptoms, and Social Support Reported in Standardized Outpatient Clinic Questionnaires With Subsequent Hospital Discharge Disposition and 30-Day Readmissions.Archives of physical medicine and rehabilitation · 2022Article
- Managing Critical Patient-Reported Outcome Measures in Oncology Settings: System Development and Retrospective Study.JMIR medical informatics · 2022Article
- Making the Case for Patient-Reported Outcome Measures in Big-Data Rehabilitation Research: Implications for Optimizing Patient-Centered Care.Archives of physical medicine and rehabilitation · 2022Article
- Paving the Way for Electronic Patient-Centered Measurement in Team-Based Primary Care: Integrated Knowledge Translation Approach.JMIR formative research · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe effective use of patient-reported outcomes (PROs) can play a critical role in improving health care delivery and patient experience with care. However, PROs are not widely collected and used in clinical practice. This study aims to understand current opportunities and challenges with the use of PROs and the potential for health information technology (IT) to advance their use.
methodsThe Agency for Healthcare Research and Quality held two technical expert panel (TEP) meetings to discuss the current use of PROs, challenges, and opportunities in implementation, and how health IT can be leveraged to support effective PRO use in clinical practice. Results were synthesized to identify major themes and takeaways based on different stages of PRO data utilization.
resultsFindings from the TEP meetings indicated varying degrees of PRO usage in ambulatory care settings. Practices often lack a business case to collect PROs. Primary care physicians face more challenges than specialists in selecting appropriate PRO measures due to extensive variation in their patient populations. Providers also need training to use PRO data for shared decision making and population health management. Potential research areas to address PRO implementation challenges include measures harmonization, implementation process and workflow, electronic data collection and integration, and user-friendly data displays.
conclusionsOpportunities exist during different stages of PRO implementation to advance the use of PROs in clinical practice. Health IT can be utilized to address challenges in data collection, integration, and visualization to make PRO data accessible and understandable to patients and providers.
Indexed as
Identifiers
30684149What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.