ArticleTrials2019
Why patients decline participation in an intervention to reduce re-hospitalization through patient activation: whom are we missing?
Article in Trials, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02823795 (The Supporting Patient Activation in Transition to Home), which is not on this map. Cited by 15 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
The Supporting Patient Activation in Transition to Home (sPATH) Intervention - a Study Protocol of Randomized Controlled Trial
Who cites it
15 citing papers in PubMed, 27 citations in OpenAlex.
- Trial
- The effect of education of self-care behaviors on the quality of life and resilience of multiple sclerosis patients.BMC neurology · 2024Trial
- Trial
- Supporting people with chronic kidney disease to self-manage their condition: understanding the lived experiences, needs and requirements, and barriers and facilitators.Journal of nephrology · 2025Article
- Reasons for declining participation in inpatient research among historically minoritized racial and ethnic communities: A scoping review.Contemporary clinical trials communications · 2024Article
- Challenges in reaching patients with severe mental illness for trials in general practice-a convergent mixed methods study based on the SOFIA pilot trial.Pilot and feasibility studies · 2023Article
- Understanding reasons and factors for participation and non-participation to a medication adherence program for patients with diabetic kidney disease in Switzerland: a mixed methods study.Diabetology & metabolic syndrome · 2022Article
- Acceptance and Effect of Continuous Glucose Monitoring on Discharge From Hospital in Patients With Type 2 Diabetes: Open-label, Prospective, Controlled Study.JMIR diabetes · 2022Article
- Patient Activation: The Cornerstone of Effective Self-Management in Chronic Kidney Disease?Kidney and dialysis · 2022Article
- Informing Healthcare Decisions with Observational Research Assessing Causal Effect. An Official American Thoracic Society Research Statement.American journal of respiratory and critical care medicine · 2021Article
- "Standing on common ground" - a qualitative study of self-management support for patients with multimorbidity in primary health care.BMC family practice · 2020Article
- Recruitment Challenges for Low-Risk Health System Intervention Trials in Older Adults: A Case Study.Journal of the American Geriatrics Society · 2020Article
- Determinants of participation in a post-hospitalization physical exercise program for older adults.BMC geriatrics · 2020Article
- Perceptions of Home Telemonitoring Use Among Patients With Chronic Obstructive Pulmonary Disease: Qualitative Study.JMIR mHealth and uHealth · 2020Article
- A research tool for measuring non-participation of older people in research on digital health.BMC public health · 2019Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundDespite worldwide interest in reducing re-hospitalization, there is limited knowledge regarding characteristics of patients who chose to decline participation in such efforts and why. The aim is to explore reasons to decline participation in an intervention using motivational interviewing to reduce re-hospitalization through patient activation for persons with chronic obstructive pulmonary disease or heart failure.
methodsThis study uses data from 385 patients who were asked about participating in a randomized controlled trial; of these, 232 declined participation. Data on age, gender, and diagnosis were collected for those who agreed to participate and those who declined. Reasons to decline participation were collected for those who were asked to participate but refused. The stated reasons to decline were analyzed using content analysis, and the categories identified were used for the statistical analysis.
resultsThe main reasons for declining participation were having sufficient support (17.5%), no need for support (16%), being too ill (14.6%), and lack of time for illness-related activities (14.2%). A statistically significant negative association between age and willingness to participate was found (odds ratio = - 0.03, 95% confidence interval 0.95-0.99).
conclusionsThose who agreed to participate were younger than non-participants, and non-participants either lacked time for illness-related activities or did not have the energy needed to become involved in the intervention.
trial registrationClinicalTrials.gov, NCT02823795 . Registered on 1 July 2016.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.