ArticleEuropean journal of cancer care2019
Psychosocial impact of human papillomavirus-related head and neck cancer on patients and their partners: A qualitative interview study.
Article in European journal of cancer care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it, 29 citations in OpenAlex.
- The psychosocial experiences of human papillomavirus (HPV) positive oropharyngeal cancer patients following (chemo)radiotherapy: A systematic review and meta-ethnography.Psycho-oncology · 2022Pooled it
- Patient experience and shared decision-making in HPV-positive oropharyngeal cancer: A systematic review of qualitative and quantitative evidence.Clinical and translational radiation oncology · 2025Review
- Understanding Disclosure Decisions and Communication About HPV-Related Cancer: A Qualitative Exploration of Stigma and Social Support.Healthcare (Basel, Switzerland) · 2025Article
- Predictive Value of Individual Behavioral Risk Factors for New Mood-Related Psychiatric Disorder After Diagnosis of Cancer.Psycho-oncology · 2024Article
- A Discourse of Deviance: Blame, Shame, Stigma and the Social Construction of Head and Neck Cancer.Qualitative health research · 2024Article
- An education resource for human papillomavirus oropharyngeal cancer patients: think-aloud interviews.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Head and neck cancer treatment outcome priorities: A multi-perspective concept mapping study.PloS one · 2023Article
- Article
- Impact of stigma and stigma-focused interventions on screening and treatment outcomes in cancer patients.Ecancermedicalscience · 2021Review
- Translation and Factor Analysis of the Stigma Scale for Chronic Illnesses 8-Item Version Among Iranian Women With Breast Cancer.Asian Pacific journal of cancer prevention : APJCP · 2020Article
- Psychosocial impact of human papillomavirus-related head and neck cancer on patients and their partners: A qualitative interview study.European journal of cancer care · 2019Article
- Psychosocial aspects of quality of life outcomes in post-treatment human papillomavirus-associated cancer survivors in the United States: A scoping review.Health psychology openReview
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 2 countries.
Funding
Abstract
objectiveIncreasing numbers of patients face the psychosocial challenge of a diagnosis of oropharyngeal squamous cell carcinoma (OSCC) caused by human papillomavirus (HPV). We explored the psychosocial impact of an HPV-OSCC diagnosis for patients and their partners.
methodsIn-depth interviews were conducted with patients (n = 20) and a subset of their partners (n = 12), identified through medical records at two UK hospitals. Interviews were recorded, transcribed verbatim and analysed using thematic Framework Analysis.
resultsOnly 12/20 patients interviewed (and five partners) were aware of their HPV status and the main analysis focused on this sub-sample. In discussing the cause of their cancer, patients and their partners talked about not wanting to know; whether they disclosed the cause of their cancer to others; their reactions to being diagnosed with HPV; the prognosis information they were given and the questions they had about HPV. Most concerns were cancer-related rather than HPV-related, but some patients (n = 3) described feelings of embarrassment and perceived stigma about HPV.
conclusionSome patients and partners who are told HPV is the cause of their OSCC have questions about HPV and seek further information. Concerns and uncertainties about the sexually transmitted nature of HPV need to be addressed by health professionals.
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