Evidence map›Paper›PMID 30675664›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2019

Inclusion of children in the initial conversation about their cancer diagnosis: impact on parent experiences of the communication process.

Sarah R Brand McCarthy, Tammy I Kang, Jennifer W Mack

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Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Review
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4 · The record

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PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Sarah R Brand McCarthyDepartment of Pediatric Oncology, Dana-Farber Cancer Institute, Boston, MA, USA. McCarthy.Sarah@mayo.edu.ORCID http://orcid.org/0000-0001-5489-6875
Tammy I KangSection of Pediatric Palliative Care, Texas Children's Hospital, Houston, TX, USA.
Jennifer W MackDepartment of Pediatric Oncology, Dana-Farber Cancer Institute, Boston, MA, USA.

Funding

Agency for Healthcare Research T32HS000063American Cancer Society None
6 · The paper itself

Abstract

introductionIncluding children in medical conversations is considered the standard of care for children with cancer. However, previous qualitative research has raised concerns about how the child's presence impacts the parent's communication experience. The current study examines the frequency and impact of child presence during a serious medical conversation on the parent's communication experience in pediatric oncology.

methodsThree hundred sixty parents of children newly diagnosed with cancer completed questionnaires assessing the child's presence during the initial conversation with the oncologist about diagnosis and treatment and parental communication experiences. Primary oncologists completed a survey question about the child's prognosis.

resultsSixty-one percent of children were present during the initial conversation, with lowest rates among children aged 3-6 (44%) and 7-12 (44%). Child presence was not associated with parents' reports that they received prognostic information (p = 0.20), high-quality information (p = 0.19), or high-quality communication about the child's cancer (p = 1.0). DISCUSSION: The parent's communication experience is not diminished by the choice to include the child. Given the bioethical imperative to include children in conversations about serious illness whenever possible, this concern should not be used to exclude children, but rather to give parents additional time of their own when needed to fully process decisions.

Indexed as

CommunicationParent-Child RelationsPhysician-Patient RelationsTruth DisclosureAdolescentAdultAge of OnsetChildChild, PreschoolDecision MakingFemaleHumansInfantInfant, NewbornMaleMiddle AgedCommunicationParentsPediatric hematology/oncologyPsychosocial

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.