ArticleBMC health services research2019
Do health and social support and personal autonomy have an influence on the health-related quality of life of individuals with intellectual disability?
Article in BMC health services research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Perceptions of People With Intellectual Disabilities on Autonomy and Decision-Making in Daily Life: A Systematic Review and Synthesis of Qualitative Studies.Journal of intellectual disability research : JIDR · 2026Pooled it
- The Design, Content and Delivery of Relationship and Sexuality Education Programmes for People with Intellectual Disabilities: A Systematic Review of the International Evidence.International journal of environmental research and public health · 2020Pooled it
- Perceived Autonomy in People With Intellectual Disabilities: Psychometric Properties of an Easy-to-Read Self-Administered Scale.Journal of intellectual disability research : JIDR · 2026Article
- Article
- Perceived Needs of People with Intellectual Disabilities Undergoing the Ageing Process.Healthcare (Basel, Switzerland) · 2025Article
- The Impact of Swallowing Difficulties on Quality of Life in Adults with Intellectual Disabilities in Residential Care: Cross-Sectional Study.International journal of environmental research and public health · 2025Article
- Perspectives of Adults with Intellectual Disabilities on Quality of Life: A Qualitative Study.International journal of environmental research and public health · 2024Article
- Article
- Effects of the special olympics unified sports soccer training program on executive function in adolescents with intellectual disabilities.Journal of exercise science and fitness · 2024Article
- Perceived Impact of the COVID-19 Pandemic on Adults with Intellectual and Developmental Disability: A Qualitative Study.Journal of intellectual disabilities : JOID · 2024Article
- Health support of people with intellectual disability and the crucial role of support workers.BMC health services research · 2024Article
- Exploring the alignment between clinician-reported assessment of social autonomy and patient-reported assessment of quality of life in mood disorders: a cross-sectional study.Frontiers in psychiatry · 2024Article
- Effects of a multicomponent physical exercise programme on perceived health-related quality of life and on depressive symptoms in older adults living in long-term nursing homes.International journal of nursing sciences · 2023Article
- A New Screening Tool for Rapid Diagnosis of Functional and Environmental Factors Influencing Adults with Intellectual Disabilities.Diagnostics (Basel, Switzerland) · 2022Article
- Aligning with the flow of control: A grounded theory study of choice and autonomy in decision-making practices of people with intellectual disabilities.International journal of qualitative studies on health and well-being · 2021Article
- Description of Daily Living Skills and Independence: A Cohort from a Multidisciplinary Down Syndrome Clinic.Brain sciences · 2021Article
- Opportunities, barriers, and recommendations in down syndrome research.Translational science of rare diseases · 2021Article
- Personal Autonomy as Quality of Life Predictor for Multiple Sclerosis Patients.Journal of clinical medicine · 2020Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe aim of this study was to assess the relation between perceived social support and personal autonomy of individuals with intellectual disabilities and Health-Related Quality of Life.
methodsA cross-sectional study with a multicentre sample was carried out including 162 institutionalized individuals with intellectual disability. The measurement tool was a structured questionnaire with sociodemographic variables, and three scales: Functional Independence Measure(FIM) scale, Duke-UNC Functional Social Support Questionnaire, and SF-36 Health Survey, which were completed during an individual/family interview.
resultsThe perception of received social support is high on all 11 items of the Duke-UNC questionnaire, with an average of 3.45 for item-1 and 4.85 for item-11, which represents a total perceived support of an average 47.98 points (±SD7.30) (normal support). The Mental-Health component is rated worse than Physical-Health (67.41 vs. 71.74). The average rates for the different dimensions range from 57.34 points for Social-Functioning (the lowest rating) to 79.61 points for Bodily-Pain (highest rating). A multiple linear regression analysis reveals that the dimensions of Physical-Functioning (p < 0.001), Role-Physical (p = 0.016) and Bodily-Pain (p = 0.022), which are elements of the Physical-Health component, are independent predictive variables with the Degree of Autonomy (FIM) as a dependent variable. Social-Support (Duke-UNC) as a dependent variable is determined by the dimensions of Vitality (p = 0.014), Role-Emotional (p = 0.001) and Mental-Health (p < 0.001), which are part of the Mental-Health component and act as independent predictive variables.
conclusionsIndividuals with intellectual disability and a higher degree of personal autonomy determined by institutional and family support report better Health and Quality of Life.
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Registered trials
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