ArticleBMC palliative care2019
"An odyssey without receiving proper care" - experts' views on palliative care provision for patients with migration background in Germany.
Article in BMC palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 3 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
19 citing papers in PubMed, 3 syntheses or guidelines pooled it, 40 citations in OpenAlex.
- First generation migrants' experiences of terminal illness: a systematic review of diasporic dying.BMC palliative care · 2025Pooled it
- Healthcare practitioners' perspectives of providing palliative care to patients from culturally diverse backgrounds: a qualitative systematic review.BMC palliative care · 2023Pooled it
- Palliative Care Utilization Among Non-Western Migrants in Europe: A Systematic Review.Journal of immigrant and minority health · 2022Pooled it
- Beyond Barriers: Reconsidering Cultural Sensitivity in Hospice and Palliative Care Services by Applying the Empathy Map.Journal of immigrant and minority health · 2026Article
- Access to hospice and palliative care for people with a migration background: a qualitative study on challenges and recommendations in end-of-life care.BMC palliative care · 2026Article
- Diversity-sensitive palliative and hospice care in Germany - awareness, attitudes, and measures taken by service providers.BMC palliative care · 2026Article
- Health policy and health system experiences of forcibly displaced populations: a scoping review of qualitative evidence.BMJ public health · 2026Article
- Community health assets and refugee wellbeing: Qualitative evidence across mental health, disability inclusion, end-of-life care, and women's health - A global scoping review.PLOS global public health · 2026Article
- Between host country and homeland: a grounded theory study on place of dying and death in migrant cancer patients.BMC palliative care · 2025Article
- Managing cultural diversity in end-of-life care: a qualitative study.BMC palliative care · 2025Article
- Health-oriented leadership in specialized outpatient palliative care teams in Germany: a qualitative study with palliative care professionals.BMC palliative care · 2025Article
- Participatory development of a manual for the implementation of diversity-sensitive palliative and hospice care in Germany: a mixed-methods study protocol.BMC palliative care · 2023Article
- Russian nurses' readiness for transcultural care of palliative patients.BMC palliative care · 2023Article
- Association between resident status and patients' experiences of primary care: a cross-sectional study in the Greater Bay Area, China.BMJ open · 2022Article
- How does people-centered integrated care in medical alliance in China promote the continuity of healthcare for internal migrants: The moderating role of respect.Frontiers in public health · 2022Article
- "Withstanding ambivalence is of particular importance"-Controversies among experts on dealing with desire to die in palliative care.PloS one · 2021Article
- Introducing cross-cultural education in palliative care: focus groups with experts on practical strategies.BMC palliative care · 2020Article
- Quantifying the Language Barrier-A Total Survey of Parents' Spoken Languages and Local Language Skills as Perceived by Different Professions in Pediatric Palliative Care.Children (Basel, Switzerland) · 2020Article
- Palliative and End-of-Life Care Access for Immigrants Living in High-income Countries: A Scoping Review.Gerontology & geriatric medicineArticle
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
Abstract
backgroundMigrants seem to be underrepresented in palliative care in Germany. Access barriers and challenges in care remain unclear. We aimed to provide a comprehensive insight into palliative care for migrants, using expert interviews.
methodsInterviews with experts on palliative and general health care for migrants were audiotaped and transcribed. Data analysis followed a qualitative content analysis method for expert interviews proposed by Meuser and Nagel.
resultsIn total, 13 experts from various fields (palliative and hospice care, other care, research and training) were interviewed. Experts identified access barriers on the health care system and the patient level as well as the sociopolitical level. Services don't address migrants, who may use parallel structures. Patients may distrust the health care system, be oriented towards their home country and expect the family to care for them. In care, poor adaptation and inflexibility of health care services regarding needs of migrant patients because of scarce resources, patients' preferences which may contradict professionals' values, and communication both on the verbal and nonverbal level were identified as the main challenges. Conflicts between patients, families and professionals are at risk to be interpreted exclusively as cultural conflicts. Palliative care providers should use skilled interpreters instead of family interpreters or unskilled staff members, and focus on training cultural competence. Furthermore, intercultural teams could enhance palliative care provision for migrants.
conclusionsThough needs and wishes of migrant patients are often found to be similar to those of non-migrant patients, there are migration-specific aspects that can influence care provision at the end of life. Migration should be regarded as a biographical experience that has a severe and ongoing impact on the life of an individual and their family. Language barriers have to be considered, especially regarding patients' right to informed decision making. The reimbursement of interpreters in health care remains an open question.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.