Evidence map›Paper›PMID 30664453›Full record

Trial reportJournal of medical Internet research2019

Improving Electronic Health Record Note Comprehension With NoteAid: Randomized Trial of Electronic Health Record Note Comprehension Interventions With Crowdsourced Workers.

John P Lalor, Beverly Woolf, Hong Yu

Abstract readRandomized Controlled Trial
In one paragraph

Trial report in Journal of medical Internet research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
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  5. Observational
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  13. BENTO: A Visual Platform for Building Clinical NLP Pipelines Based on CodaLab.Proceedings of the conference. Association for Computational Linguistics. Meeting · 2020
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  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

John P LalorCollege of Information and Computer Sciences, University of Massachusetts, Amherst, MA, United States.ORCID 0000-0003-0848-4786
Beverly WoolfCollege of Information and Computer Sciences, University of Massachusetts, Amherst, MA, United States.ORCID 0000-0002-0509-307X
Hong YuCollege of Information and Computer Sciences, University of Massachusetts, Amherst, MA, United States.ORCID 0000-0001-9263-5035

Funding

Resource Curation and Evaluation for EHR Note ComprehensionR01LM012817 · NLM · UNIVERSITY OF MASSACHUSETTS LOWELL · PI YU, HONG · 2018 to 2020
$1.0M
Systems for Helping Veterans Comprehend Electronic Health Record NotesI01HX001457 · VA · NORTHAMPTON VA MEDICAL CENTER · PI YU, HONG · 2015 to 2020
–
HSRD VA I01 HX001457NLM NIH HHS R01 LM012817
6 · The paper itself

Abstract

backgroundPatient portals are becoming more common, and with them, the ability of patients to access their personal electronic health records (EHRs). EHRs, in particular the free-text EHR notes, often contain medical jargon and terms that are difficult for laypersons to understand. There are many Web-based resources for learning more about particular diseases or conditions, including systems that directly link to lay definitions or educational materials for medical concepts.

objectiveOur goal is to determine whether use of one such tool, NoteAid, leads to higher EHR note comprehension ability. We use a new EHR note comprehension assessment tool instead of patient self-reported scores.

methodsIn this work, we compare a passive, self-service educational resource (MedlinePlus) with an active resource (NoteAid) where definitions are provided to the user for medical concepts that the system identifies. We use Amazon Mechanical Turk (AMT) to recruit individuals to complete ComprehENotes, a new test of EHR note comprehension.

resultsMean scores for individuals with access to NoteAid are significantly higher than the mean baseline scores, both for raw scores (P=.008) and estimated ability (P=.02).

conclusionsIn our experiments, we show that the active intervention leads to significantly higher scores on the comprehension test as compared with a baseline group with no resources provided. In contrast, there is no significant difference between the group that was provided with the passive intervention and the baseline group. Finally, we analyze the demographics of the individuals who participated in our AMT task and show differences between groups that align with the current understanding of health literacy between populations. This is the first work to show improvements in comprehension using tools such as NoteAid as measured by an EHR note comprehension assessment tool as opposed to patient self-reported scores.

Indexed as

ComprehensionCrowdsourcingElectronic Health RecordsFemaleHealth LiteracyHumansMalePatient Portalscrowdsourcinghealth literacyinformation storage and retrievalMedlinePlusnatural language processingpsychometrics

Identifiers

PMID30664453
PMCPMC6351990

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.