ArticleClinical nephrology2019
Patients' perspectives on dialysis decision-making and end-of-life care .
Article in Clinical nephrology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 43 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Preference of Life-Sustaining Treatment Among Patients With End Stage Renal Disease
Exploring the Impact of " ACP Board Game for Life" on Death Preparation and Anxiety in Patients With Stage 4 and 5 Chronic Kidney Diseases: A Pilot Study
Who cites it
43 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Identification and synthesis of end-of-life decision-making measures: a scoping review.Frontiers in medicine · 2025Pooled it
- Feasibility and Acceptability of a Palliative Care Intervention among Older Adults with Advanced CKD and Their Caregivers.Kidney360 · 2025Trial
- Effectiveness of a brief hope intervention for chronic kidney disease patients on the decisional conflict and quality of life: a pilot randomized controlled trial.BMC nephrology · 2022Trial
- Older Patients and Conservative Kidney Management.JAMA network open · 2026Article
- Ten tips for the first hemodialysis sessions.Clinical kidney journal · 2026Review
- Decision support training for chronic kidney disease dyads: the ImPart Study protocol.Pilot and feasibility studies · 2025Article
- Kidney-therapy decision-making among older adults and caregivers: treatment beliefs, prognostic information, and health priorities.BMC nephrology · 2025Article
- Supporting Shared Decision-Making in Life-Altering Kidney Therapy Decisions for Older Adults: A Review.JAMA internal medicine · 2025Review
- Perspectives of adult advanced pre-dialysis chronic kidney disease patients about kidney replacement therapy in three referral hospitals in Rwanda.BMC nephrology · 2025Article
- Questions older people and caregivers ask about kidney therapies: A computer-assisted analysis.Patient education and counseling · 2025Article
- Patient Activation, Social Support, Physician Trust, and Shared Dialysis Decision-Making: A Cross-Sectional Investigation.Kidney medicine · 2025Article
- Quality of life trajectories for different dialysis modalities-a nationwide study.Clinical kidney journal · 2025Article
- Nephrology providers' perspective and use of mortality prognostic tools in dialysis patients.BMC nephrology · 2024Article
- Uncovering Patient and Caregiver Goals for Goal-Concordant Care in Kidney Therapy Decisions.The American journal of hospice & palliative care · 2024Article
- Palliative Care Acceptability for Older Adults with Advanced CKD: A Qualitative Study of Patients and Nephrologists.Kidney medicine · 2024Article
- Experience of Chronic Kidney Disease and Perceptions of Transplantation by Sex.JAMA network open · 2024Article
- Advance care planning for patients with end-stage kidney disease on dialysis: narrative review of the current evidence, and future considerations.Journal of nephrology · 2024Review
- Article
- Addressing Racial Injustice, Developing Cultural Humility, and Fostering Rapport-Building Communication Skills to Improve Disparities in End-of-Life Planning.Journal of pain and symptom management · 2023Article
- Racial Disparities in Health Beliefs and Advance Care Planning Among Patients Receiving Maintenance Dialysis.Journal of pain and symptom management · 2023Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundFew studies have explored dialysis patients' perspectives on dialysis decision-making and end-of-life-care (EoLC) preferences. We surveyed a racially diverse cohort of maintenance dialysis patients in the Cleveland, OH, USA, metropolitan area. MATERIALS AND
methodsIn this cross-sectional study, we administered a 41-item questionnaire to 450 adult chronic dialysis patients. Items assessed patients' knowledge of their kidney disease as well as their attitudes toward chronic kidney disease (CKD) treatment issues and EoLC issues.
resultsThe cohort included 67% Blacks, 27% Caucasians, 2.8% Hispanics, and 2.4% others. The response rate was 94% (423/450). Most patients considered it essential to obtain detailed information about their medical condition (80.6%) and prognosis (78.3%). Nearly 19% of respondents regretted their decision to start dialysis. 41% of patients would prefer treatment(s) aimed at relieving pain rather than prolonging life (30.5%), but a majority would want to be resuscitated (55.3%). Only 8.4% reported having a designated healthcare proxy, and 35.7% reported completing a living will. A significant percentage of patients wished to discuss their quality of life (71%), psychosocial and spiritual concerns (50.4%), and end-of-life issues (38%) with their nephrologist.
conclusionMost dialysis patients wish to have more frequent discussions about their disease, prognosis, and EoLC planning. Findings from this study can inform the design of future interventions. .
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.