Evidence map›Paper›PMID 30662922›Full record

ArticleQualitative psychology (Washington, D.C.)2018

Is It Time to Share Qualitative Research Data?

James M DuBois, Michelle Strait, Heidi Walsh

Abstract read
In one paragraph

Article in Qualitative psychology (Washington, D.C.), 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.

0numbers the graph read from it
0cells of the map it votes in
23citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

23 citing papers in PubMed.

  1. Article
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  8. Exchanging words: Engaging the challenges of sharing qualitative research data.Proceedings of the National Academy of Sciences of the United States of America · 2023
    Article
  9. Article
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  12. Article
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  20. Examining Data Repository Guidelines for Qualitative Data Sharing.Journal of empirical research on human research ethics : JERHRE · 2018
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

James M DuBoisDepartment of Medicine, Washington University in St. Louis.
Michelle StraitDepartment of Medicine, Washington University in St. Louis; Heidi Walsh, Department of Medicine, Washington University in St. Louis.
Heidi WalshDepartment of Medicine, Washington University in St. Louis.

Funding

WU INSTITUTE OF CLINICAL AND TRANSLATIONAL SCIENCESUL1TR002345 · NCATS · WASHINGTON UNIVERSITY · PI William G. Powderly · 2017 to 2026
$97.8M
Washington University Institute of Clinical and Translational SciencesUL1TR000448 · NCATS · WASHINGTON UNIVERSITY · PI EVANOFF, BRADLEY A · 2012 to 2016
$41.4M
SHARING QUALITATIVE RESEARCH DATA: IDENTIFYING AND ADDRESSING ETHICAL AND PRACTICAL BARRIERSR01HG009351 · NHGRI · WASHINGTON UNIVERSITY · PI James M Dubois · 2017 to 2026
$4.0M
NCATS NIH HHS UL1 TR000448NCATS NIH HHS UL1 TR002345NHGRI NIH HHS R01 HG009351
6 · The paper itself

Abstract

Policies by the National Institutes of Health and the National Science Foundation, as well as scandals surrounding failures to reproduce the findings of key studies in psychology, have generated increased calls for sharing research data. Most of these discussions have focused on quantitative, rather than qualitative, research data. This paper examines scientific, ethical, and policy issues surrounding sharing qualitative research data. We consider advantages of sharing data, including enabling verification of findings, promoting new research in an economical manner, supporting research education, and fostering public trust in science. We then examine standard procedures for archiving and sharing data, such as anonymizing data and establishing data use agreements. Finally, we engage a series of concerns with sharing qualitative research data such as the importance of relationships in interpreting data, the risk of re-identifying participants, issues surrounding consent and data ownership, and the burden of data documentation and depositing on researchers. For each concern, we identify options that enable data sharing or describe conditions under which select data might be withheld from a data repository. We conclude by suggesting that the default assumption should be that qualitative data will be shared unless concerns exist that cannot be addressed through standard data depositing practices such as anonymizing data or through data use agreements.

Indexed as

confidentialitydata sharingqualitative researchresearch ethics

Identifiers

PMID30662922
PMCPMC6338425

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.