Evidence map›Paper›PMID 30662065›Full record

ArticleGenetics in medicine : official journal of the American College of Medical Genetics2019

Constructing identities: the implications of DTC ancestry testing for tribal communities.

Hina Walajahi, David R Wilson, Sara Chandros Hull

Abstract read
In one paragraph

Article in Genetics in medicine : official journal of the American College of Medical Genetics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed.

  1. Article
  2. Article
  3. Review
  4. Article
  5. Review
  6. Article
  7. Impacts of personal DNA ancestry testing.Journal of community genetics · 2021
    Article
  8. Article
  9. The Legal Weaponization of Racialized DNA: A New Genetic Politics of Affirmative Action.Georgetown journal of law & modern critical race perspectives · 2021
    Article
  10. Review
  11. Article
  12. Article
  13. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Hina WalajahiDepartment of Bioethics, Clinical Center, National Institutes of Health, Bethesda, MD, USA.
David R WilsonTribal Health Research Office, Office of the Director, National Institutes of Health, Bethesda, MD, USA.
Sara Chandros HullDepartment of Bioethics, Clinical Center, National Institutes of Health, Bethesda, MD, USA. shull@mail.nih.gov.

Funding

Intramural NIH HHS Z99 CL999999Intramural NIH HHS Z99 HG999999
6 · The paper itself

Abstract

purposeDirect-to-consumer (DTC) genetic ancestry companies have rapidly increased in popularity, with top testing services maintaining genetic databases of several million consumers. While genetic ancestry tests are often characterized as recreational, companies invoke deeply personal concepts of individual identity, group membership, and kinship when marketing their services. In particular, many companies claim to be able to determine Native American heritage, claims that are not supported by the state of the science and may have significant cultural and political consequences for US tribal communities. This study aims to fill the gaps in empirical work on this issue and characterize how genetic ancestry companies articulate indigenous identity through their marketing strategies.

methodsWe conducted a qualitative content analysis of the public facing websites for 25 DTC genetic ancestry companies that offer services measuring Native American ancestry.

resultsOur findings describe how genetic ancestry companies promote a causal relationship between genetics and self-identity through marketing language such as "Discover Yourself" and "Are you Native American?" and how this may affect US tribal communities.

conclusionGenetic ancestry company claims regarding genetic ancestry, personal identity, and cultural membership are problematic and challenge how US tribal nations currently identify and create potential obstacles for tribal sovereignty.

Indexed as

Databases, GeneticGenetic TestingDirect-To-Consumer Screening and TestingHumansIndians, North AmericanPedigreePopulation GroupsUnited Statescommercial ancestry testdirect-to-consumerempirical bioethicsindigenous identityNative American

Identifiers

PMID30662065
PMCPMC6642857

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.