ArticleBMC palliative care2019
Integrated respiratory and palliative care leads to high levels of satisfaction: a survey of patients and carers.
Article in BMC palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it, 29 citations in OpenAlex.
- BreathCarer: Informal carers of patients with chronic breathlessness: a mixed-methods systematic review of burden, needs, coping, and support interventions.BMC palliative care · 2025Pooled it
- Perspectives of primary care and community clinicians on chronic breathlessness management.ERJ open research · 2026Article
- BREATHE: an educational approach for optimising the management of chronic respiratory diseases in primary care.ERJ open research · 2026Article
- Chronic obstructive pulmonary disease: A narrative synthesis of its hallmarks for palliative care clinicians.European journal of internal medicine · 2025Review
- Benefits of integrating palliative care: a qualitative exploration of the perspectives of palliative care providers in a tertiary health facility in Ghana.Palliative care and social practice · 2023Article
- Unmet needs in palliative care for patients with common non-cancer diseases: a cross-sectional study.BMC palliative care · 2022Article
- "The whole of humanity has lungs, doesn't it? We are not all the same sort of people": patient preferences and choices for an online, self-guided chronic breathlessness supportive intervention: SELF-BREATHE.ERJ open research · 2022Article
- The Role of Palliative Care in COPD.Chest · 2022Review
- Palliative and End-of-Life Care Service Models: To What Extent Are Consumer Perspectives Considered?Healthcare (Basel, Switzerland) · 2021Review
- Advance care planning and palliative care in ACHD: the healthcare providers' perspective.Cardiology in the young · 2020Article
- Psychosocial Interventions for Patients with Severe COPD-An Up-to-Date Literature Review.Medicina (Kaunas, Lithuania) · 2019Review
- Integration or Empowerment of Respiratory Physicians? What is the Best Fit for Providing Palliative Care for Advanced Respiratory Diseases in the Indian Context?Indian journal of palliative careArticle
- A narrative review of proactive palliative care models for people with COPD.Therapeutic advances in respiratory diseaseReview
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe Advanced Lung Disease Service is a unique, new model of integrated respiratory and palliative care, which aims to address the unmet needs of patients with advanced, non-malignant, respiratory diseases. This study aimed to explore patients' and carers' experiences of integrated palliative care and identify valued aspects of care.
methodsAll current patients of the integrated service and their carers were invited to complete a confidential questionnaire by post or with an independent researcher.
resultsEighty-eight responses were received from 64 (80.0%) eligible patients and from 24 (60%) eligible carers. Most participants (84, 95.5%) believed the integrated service helped them to manage breathlessness and nearly all participants (87, 98.9%) reported increased confidence managing symptoms. One third of patients (34.4%) had received a nurse-led domiciliary visit, with nearly all regarding this as helpful. Most participants believed the integrated respiratory and palliative care team listened to them carefully (87, 98.9%) with opportunities to express their views (88, 100%). Highly valued aspects of the service were continuity of care (82, 93.2%) and long-term care (77, 87.5%). Three quarters of participants (66, 75.0%) rated their care as excellent, with 20.5% rating it as very good. Nearly all (87, 98.9%) participants reported that they would recommend the service to others.
conclusionsPatients and carers expressed high levels of satisfaction with this model of integrated respiratory and palliative care. Continuity of care, high quality communication and feeling cared for were greatly valued and highlight simple but important aspects of care for all patients.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.