Evidence map›Paper›PMID 30647441›Full record

ArticleEuropean journal of clinical nutrition2019

Anthropometric measurement standardization for a multicenter nutrition survey in children with spinal muscular atrophy.

Simona Bertoli, Andrea Foppiani, Ramona De Amicis, Alessandro Leone, Chiara Mastella, Michela Bassano, Ester Giaquinto, Giovanni Baranello, Alberto Battezzati

Registry-linked trialOpen access · hybridAbstract read
PubMed Publisher
In one paragraph

Article in European journal of clinical nutrition, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06309251 (Clinical and Nutritional Effectiveness and Impact on the Quality of Life of the Ketogenic Diet in Pediatric Patients With Neurological, Genetic or Metabolic Disorders), which is not on this map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.6field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06309251 recruitingnot on this mapstarted 2022, after this paper: background citation

Clinical and Nutritional Effectiveness and Impact on the Quality of Life of the Ketogenic Diet in Pediatric Patients With Neurological, Genetic or Metabolic Disorders: a Multicenter Prospective Observational Study

TypeobservationalSponsorDanone Nutricia SpA Società BenefitRan2022 to 2026Enrolled100ConditionsDrug Resistant Epilepsy, Autism Spectrum Disorder, Chronic Migraine, Brain Tumor, PediatricArmsketogenic diet (as per clinical practice)
3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 15 citations in OpenAlex.

  1. Article
  2. Article
  3. Observational
  4. Growth patterns in children with spinal muscular atrophy.Orphanet journal of rare diseases · 2021
    Article
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 4 institutions in 1 country.

Simona BertoliInternational Center for the Assessment of Nutritional Status (ICANS), Department of Food Environmental and Nutritional Sciences (DeFENS), University of Milan, Milan, Italy. simona.bertoli@unimi.it.ORCID http://orcid.org/0000-0001-5867-8074
Andrea FoppianiInternational Center for the Assessment of Nutritional Status (ICANS), Department of Food Environmental and Nutritional Sciences (DeFENS), University of Milan, Milan, Italy.
Ramona De AmicisInternational Center for the Assessment of Nutritional Status (ICANS), Department of Food Environmental and Nutritional Sciences (DeFENS), University of Milan, Milan, Italy.
Alessandro LeoneInternational Center for the Assessment of Nutritional Status (ICANS), Department of Food Environmental and Nutritional Sciences (DeFENS), University of Milan, Milan, Italy.ORCID http://orcid.org/0000-0001-8063-8490
Chiara MastellaSAPRE, Parents Early Habilitation Service, Fondazione IRCCS Ca' Granda, Policlinico Hospital, Milan, Italy.
Michela BassanoDietetic and Nutrition Center, M. Bufalini Hospital, Auslromagna-Cesena, Italy.
Ester GiaquintoDietetic and Nutrition Center, M. Bufalini Hospital, Auslromagna-Cesena, Italy.
Giovanni BaranelloDevelopmental Neurology Unit, Foundation of the Carlo Besta Neurological Institute, IRCCS, Milan, Italy.
Alberto BattezzatiInternational Center for the Assessment of Nutritional Status (ICANS), Department of Food Environmental and Nutritional Sciences (DeFENS), University of Milan, Milan, Italy.
University of Milan · ITOspedale “M. Bufalini” di Cesena · ITFondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico · ITFondazione IRCCS Istituto Neurologico Carlo Besta · IT

Funding

Fondazione Telethon (Telethon Foundation) GUP15014
6 · The paper itself

Abstract

Spinal muscular atrophy (SMA) is a neuromuscular disease associated with nutritional status derangement and altered body composition. New drugs are changing the natural history of the disease, so now more than ever is important to focus on the correct assessment of nutritional status in SMA. We implemented a standardization process for the anthropometric measurement as part of our ongoing longitudinal study of growth patterns in SMA patients. It features a procedural manual, included in this communication, observers training and reliability assessment, of which we publish the values obtained in our pilot study. The standardization process was able to produce inter-observer reliability values in agreement with the literature and a procedure manual is now available for multicentre studies of nutritional status and body composition in SMA and possibly other pediatric neuromuscular disorders.

Indexed as

Muscular Atrophy, SpinalAnthropometryBody CompositionChildChild, PreschoolData CollectionFemaleHumansLongitudinal StudiesMaleNutritional StatusNutrition SurveysPilot ProjectsReproducibility of Results

Identifiers

PMID30647441
OpenAlexW2910656313

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.