Evidence map›Paper›PMID 30646887›Full record

ArticleBMC pediatrics2019

Cross-cultural validation of the Bengali version KIDSCREEN-27 quality of life questionnaire.

Rosalie Power, Rahena Akhter, Mohammad Muhit, Sabrina Wadud, Eamin Heanoy, Tasneem Karim, Nadia Badawi, Gulam Khandaker

Abstract readValidation Study
In one paragraph

Article in BMC pediatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Rosalie PowerDiscipline of Child and Adolescent Health, Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia. rpow8982@uni.sydney.edu.au.ORCID 0000-0001-9434-3941
Rahena AkhterFaculty of Dentistry, University of Sydney, Westmead, New South Wales, Australia.ORCID 0000-0001-9723-7343
Mohammad MuhitAsian Institute of Disability and Development (AIDD), University of South Asia, Dhaka, Bangladesh.ORCID 0000-0002-6313-4343
Sabrina WadudCSF Global, Bangladesh, Dhaka, Bangladesh.
Eamin HeanoyAsian Institute of Disability and Development (AIDD), University of South Asia, Dhaka, Bangladesh.
Tasneem KarimDiscipline of Child and Adolescent Health, Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia.ORCID 0000-0003-1480-8409
Nadia BadawiDiscipline of Child and Adolescent Health, Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia.
Gulam KhandakerDiscipline of Child and Adolescent Health, Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia.ORCID 0000-0002-0661-4113

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundMeasuring the health-related quality of life (HRQoL) of adolescents, including those with cerebral palsy (CP) (the major cause of childhood physical disability worldwide) in Bangladesh is pertinent although there is a dearth of validated instruments for assessing this concept. For application in a case-control study comparing HRQoL between adolescents with CP and peers without disability in Bangladesh (a typical low- and middle-income country) we cross-culturally translated and psychometrically tested KIDSCREEN-27.

methodsKIDSCREEN-27 was translated to Bengali using forward and backwards translation protocol and interviewer administered to adolescents with CP and their age and sex matched peers without disability. Primary caregivers were included for proxy-report. Sociodeomgraphic characterists and clinical information were extracted from the Bangladesh Cerebral Palsy Register (BCPR) and adolescent mental health was assessed using the Bengali version Strenghts and Difficulties Questionnaire (SDQ). Feasibility, floor and ceiling effect, internal consistency, content and construct validity of KIDSCREEN-27 were tested.

resultsFeasibility, floor and ceiling effect and internal consistency of KIDSCREEN-27 was good for both self- and proxy-report questionnaires; nil missing scores except 'school environment' (11.0% to 74.7%) which correlated to rates of non-school attendance; floor and ceiling effect ≤10.4% except 'peers and social support' 23.4%; Cronbach's alpha 0.67 to 0.91. Instrument validity was strong; factor analysis reflected original instrument dimensions within one to three factors and difference in known groups was observed by CP and adolescent mental health (p < 0.05).

conclusionKIDSCREEN-27 successfully translated to Bengali and both the self and proxy-report questionnaires showed good psychometric properties indicating suitability for case-control assessment of HRQoL between adolescents with CP and peers without disability in Bangladesh.

Indexed as

Cerebral PalsyDiagnostic Self EvaluationQuality of LifeAdolescentBangladeshCase-Control StudiesChildCultural CharacteristicsFemaleHumansMalePsychometricsTranslationsAdolescentBangladeshCerebral palsy (CP)DisabilityHealth-related quality of life (HRQoL)KIDSCREEN-27Low and middle-income country (LMIC)Psychometric propertiesTeenagerValidation

Identifiers

PMID30646887
PMCPMC6334442

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.