ArticleBMC cancer2019
Medical oncology outpatients' preferences and experiences with advanced care planning: a cross-sectional study.
Article in BMC cancer, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Patient Preferences for Discussing Life Expectancy: a Systematic Review.Journal of general internal medicine · 2021Pooled it
- Experiences with implementing advance care planning (ACP-GP) in Belgian general practice in the context of a cluster RCT: a process evaluation using the RE-AIM framework.BMC primary care · 2024Trial
- Primary Palliative Care Improves Uptake of Advance Care Planning Among Patients With Advanced Cancers.Journal of the National Comprehensive Cancer Network : JNCCN · 2023Trial
- The PREPARE for Your Care program increases advance care planning engagement among diverse older adults with cancer.Cancer · 2021Trial
- Bereaved informal caregivers' experiences with a Canadian home hospice program: a qualitative study.BMC palliative care · 2026Article
- Advance Care Planning in Oncology Nursing: An Interpretive Description Study.Journal of advanced nursing · 2025Article
- Preference for advance care planning in patients with pulmonary hypertension.Heart and vessels · 2025Article
- Article
- Increasing Advance Care Planning Discussions and Documentation.Journal of the advanced practitioner in oncology · 2025Article
- The practice of advance care planning among ambulatory cancer patients at a tertiary hospital in Kenya: descriptive cross-sectional survey.Ecancermedicalscience · 2025Article
- Review
- The trajectory of prognostic cognition in patients with advanced cancer: is the traditional advance care planning approach desirable for patients?Japanese journal of clinical oncology · 2024Review
- Understanding the Utility of Less Than Six-Month Prognosis Using Administrative Data Among U.S. Nursing Home Residents With Cancer.Palliative medicine reports · 2024Article
- Symptom Burden and Shared Care Planning in an Oncology Nurse-Led Primary Palliative Care Intervention (CONNECT) for Patients with Advanced Cancer.Journal of palliative medicine · 2023Article
- Advance Care Planning and Attainment of Cancer Patients' End-of-Life Preferences: Relatives' Perspective.The American journal of hospice & palliative care · 2023Article
- Article
- Preferences on advance care planning and end-of-life care in patients hospitalized for heart failure.ESC heart failure · 2021Article
- Brain cancer patient and support persons' experiences of psychosocial care: a mapping of research outputs.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Review
- Current Status and Cardinal Features of Patient Autonomy after Enactment of the Life-Sustaining Treatment Decisions Act in Korea.Cancer research and treatment · 2021Article
- Perceptions of Behavioral Awareness, Intention, and Readiness for Advance Care Planning: A Mixed-Method Study among Older Indigenous Patients with Late-Stage Cancers in Remote Areas of Eastern Taiwan.International journal of environmental research and public health · 2021Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundMedical oncology outpatients are a group for whom advance care planning (ACP) activities are particularly relevant. Patient views can help prioritise areas for improving end of life communication. The study aimed to determine in a sample of medical oncology outpatients: (1) the perceived importance of participating in ACP activities; (2) the proportion of patients who have ever participated in ACP activities; and (3) the proportion of patients who had not yet participated in ACP activities who were willing to do so in next month.
methodsAdult medical oncology outpatients in two Australian cancer treatment centres were consecutively approached to complete a pen-and-paper survey. Items explored perceived importance, previous participation, and willingness to participate across key ACP activities including: discussing wishes with their family or doctor; recording wishes in a written document; appointing a substitute decision maker (SDM); and discussing life-expectancy.
results185 participants completed the survey (51% consent rate). Most patients agreed it was important to: discuss end of life wishes with family (85%) and doctors (70%) and formally record wishes (73%). Few had discussed end of life wishes with a doctor (11%), recorded their wishes (15%); chosen a SDM (28%); discussed life expectancy (30%); or discussed end of life wishes with family (30%). Among those who had not participated in ACP, most were willing to discuss life expectancy (66%); discuss end of life wishes with family (57%) and a doctor (55%); and formally record wishes (56%) in the next month. Fewer wanted to appoint a SDM (40%).
conclusionAlthough medical oncology outpatients perceive ACP activities are important, rates of uptake are relatively low. The willingness of many patients to engage in ACP activities suggests a gap in current ACP practice. Efforts should focus on ensuring patients and families have clarity about the legal and other ramifications of ACP activities, and better education and training of health care providers in initiating conversations about end of life issues.
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