ArticleJournal of the American Geriatrics Society2019
Factors Influencing Emergency Care by Persons With Dementia: Stakeholder Perceptions and Unmet Needs.
Article in Journal of the American Geriatrics Society, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pooled it
- Caring for persons with Dementia: a qualitative study of the needs of carers following care recipient discharge from hospital.BMC palliative care · 2023Trial
- Housing Assistance and Health Care Access Among Older Adults with Alzheimer's Disease and Related Dementias: Evidence from Multisource Linked Survey-Administrative Data.The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry · 2026Article
- Emergency Departments Leading the Transformation of Alzheimer's and Dementia Care: Emergency Care Redesign.Journal of the American Geriatrics Society · 2026Article
- Beyond Triage: Cognitive Profiles and ED-To-Inpatient Costs and Resource Pathways in Older Adults.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2026Article
- What Matters Most to People Living With Dementia and Their Care Partners During Emergency Department Visits.Journal of the American Geriatrics Society · 2026Article
- Emergency Care for Persons Living with Dementia.Emergency medicine clinics of North America · 2025Review
- Article
- Patterns of national emergency department utilization by fee-for-service Medicare beneficiaries with dementia.Journal of the American Geriatrics Society · 2024Article
- Perspectives from persons living with dementia and their caregivers on emergency department visits, care transitions, and outpatient follow-up: A qualitative study.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2024Article
- Emergency department communication with diverse caregivers and persons living with dementia: A qualitative study.Journal of the American Geriatrics Society · 2024Article
- "Preventable hospitalizations" in older adults with dementia: Are they really preventable?Journal of the American Geriatrics Society · 2024Article
- Practitioners' Views on Enabling People With Dementia to Remain in Their Homes During and After Crisis.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2022Article
- Optimal Emergency Department Care Practices for Persons Living With Dementia: A Scoping Review.Journal of the American Medical Directors Association · 2022Article
- Emergency Department Communication in Persons Living With Dementia and Care Partners: A Scoping Review.Journal of the American Medical Directors Association · 2022Article
- Comparing emergency department use among individuals with varying levels of cognitive impairment.BMC geriatrics · 2022Article
- Effects of the Participation and Involvement of Medical Professionals in Dementia Cafés on the Attendance of People with Dementia Living at Home and Their Family Caregivers.Journal of Alzheimer's disease : JAD · 2022Article
- Changes in Health Care Use by Mexican American Medicare Beneficiaries Before and After a Diagnosis of Dementia.The journals of gerontology. Series A, Biological sciences and medical sciences · 2021Article
- Features of primary care practice influence emergency care-seeking behaviors by caregivers of persons with dementia: A multiple-perspective qualitative study.Dementia (London, England) · 2021Article
- Urgent care for patients with dementia: a scoping review of associated factors and stakeholder experiences.BMJ open · 2020Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
BACKGROUND/
objectivesPeople with dementia (PwD) frequently use emergency care services. To mitigate the disproportionately high rate of emergency care use by PwD, an understanding of contributing factors driving reliance on emergency care services and identification of feasible alternatives are needed. This study aimed to identify clinician, caregiver, and service providers' views and experiences of unmet needs leading to emergency care use among community-dwelling PwD and alternative ways of addressing these needs.
designQualitative, employing semistructured interviews with clinicians, informal caregivers, and aging service providers.
settingWisconsin, United States.
participantsInformal caregivers of PwD (n = 4), emergency medicine physicians (n = 4), primary care physicians (n = 5), geriatric healthcare providers (n = 5), aging service providers (n = 6), and community paramedics (n = 3). MEASUREMENTS: Demographic characteristics of participants and data from semistructured interviews.
findingsFour major themes were identified from interviews: (1) system fragmentation influences emergency care use by PwD, (2) informational, decision-making, and social support needs influence emergency care use by PwD, (3) emergency departments (EDs) are not designed to optimally address PwD and caregiver needs, and (4) options to prevent and address emergency care needs of PwD.
conclusionParticipants identified numerous system and individual-level unmet needs and offered many recommendations to prevent or improve ED use by PwD. These novel findings, aggregating the perspectives of multiple dementia-care stakeholder groups, serve as the first step to developing interventions that prevent the need for emergency care or deliver tailored emergency care services to this vulnerable population through new approaches. J Am Geriatr Soc 67:711-718, 2019.
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Registered trials
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