ArticleHealth science reports2018
Home enteral nutrition: Use of photo-elicitation to capture patient and caregiver experiences.
Article in Health science reports, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
7 citing papers in PubMed, 2 syntheses or guidelines pooled it, 23 citations in OpenAlex.
- A qualitative systematic review of family caregivers' experiences of artificial nutrition and hydration at home: A meta-ethnography.International journal of language & communication disorders · 2022Pooled it
- Experiences and needs of home caregivers for enteral nutrition: A systematic review of qualitative research.Nursing open · 2022Pooled it
- Article
- A scoping review of best practices in home enteral tube feeding.Primary health care research & development · 2022Article
- Usability of a Novel Enteral Feeding System: A Summative Study.Medical devices (Auckland, N.Z.) · 2022Article
- Patient Work and Treatment Burden in Type 2 Diabetes: A Mixed-Methods Study.Mayo Clinic proceedings. Innovations, quality & outcomes · 2021Article
- Home enteral nutrition: Use of photo-elicitation to capture patient and caregiver experiences.Health science reports · 2018Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDespite the importance of home enteral nutrition (HEN), there is a lack of understanding within the medical and general community of how HEN impacts the lives of patients and caregivers. Using a theoretical orientation that attends to the materiality of both everyday and medical objects, we explored patients' and family caregivers' everyday experiences of administering feeds during HEN.
methodsUsing the photo-elicitation interviewing method, patients on HEN and their family caregivers were asked to take up to 10 photographs to portray material items and activities that they considered foundational to HEN. They subsequently narrated their experiences and the participant-generated photographs in an interview. Participant-generated photographs (126) and accompanying narratives were analyzed using layered analysis, and results were theorized with attention to both social and material significance of HEN.
resultsPatients and caregivers detailed overcoming misconceptions of HEN, and through their use of photographs, they conveyed their expertise in developing their own HEN feeding systems and practices, that used both the material artifacts provided by the hospital (the tube, syringe, and formula) as well as everyday material items found in the patient's home. More than this, photographs and patient narratives depicted intimate involvement of patients' families in tube feeding. This yielded a more comprehensive understanding of the material and experiential realities of HEN.
conclusionHome enteral nutrition was found to be a shared familial experience, that in addition to requiring medical equipment also incorporated ordinary material artifacts within the social setting of the home and family life. To more accurately convey the material, experiential, and social realities of HEN to future patients, our findings underscore the importance of drawing on both visual and textual forms of patient-produced information in the development of HEN patient educational materials.
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