Evidence map›Paper›PMID 30617599›Full record

ArticleClinical rheumatology2019

Examining management and research priorities in patients with polymyalgia rheumatica: a primary care questionnaire survey.

Chris Morton, Sara Muller, Milica Bucknall, Kate Gilbert, Christian D Mallen, Samantha L Hider

Open access · hybridAbstract readMulticenter Study
In one paragraph

Article in Clinical rheumatology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
0.9field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 8 citations in OpenAlex.

  1. Review
  2. Article
  3. Article
  4. Article
  5. Observational
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 1 country.

Chris MortonResearch Institute for Primary Care and Health Sciences, Keele University, Keele, UK. c.t.morton@keele.ac.uk.ORCID http://orcid.org/0000-0001-8224-5631
Sara MullerResearch Institute for Primary Care and Health Sciences, Keele University, Keele, UK.
Milica BucknallResearch Institute for Primary Care and Health Sciences, Keele University, Keele, UK.
Kate GilbertPMRGCAuk, London, UK.
Christian D MallenResearch Institute for Primary Care and Health Sciences, Keele University, Keele, UK.
Samantha L HiderResearch Institute for Primary Care and Health Sciences, Keele University, Keele, UK.
Keele University · GBMidlands Partnership NHS Foundation Trust · GB

Funding

Department of Health RP_2014-04-026Department of Health RP-PG-0617-20005National Institute for Health Research NIHR-RP-2014-04-026
6 · The paper itself

Abstract

INTRODUCTION/

objectivesPolymyalgia rheumatica (PMR) is a common inflammatory disorder that is usually managed with oral glucocorticoids, which although effective can cause significant adverse events. Support group survey data suggests length of glucocorticoid treatment and managing side effects are key priority areas of management for patients. Recognising that not all patients will access patient support organisations, our objective was to identify priorities for PMR management and research among primary care PMR patients.

methodAll adults aged ≥ 50 years registered with 150 English general practices who had a first read code for PMR in their medical records in the preceding 3 years were mailed a self-completion questionnaire (n = 704). Survey items included questions regarding patient priorities for PMR management (from a pre-defined list of 10 items) and suggestions for future research (8 items, plus a free-text option), which were developed in collaboration with PMRGCAuk.

resultsFive hundred fifty patients responded (78%). The mean (SD) age was 74.1 (8.5) years and 361 (66%) were female. Priority research areas were focused on how to better manage pain, stiffness and fatigue (431, 78%), improving the diagnosis of PMR (393, 71%) and steroid management (342, 62%).

conclusionsThis survey of PMR patients suggests that symptom management, early diagnosis and managing medication are key areas for patients for future research. Researchers and funding organisations should be aware of these priorities if we are to generate research findings that are relevant to the widest range of stakeholders.

Indexed as

Disease ManagementResearchAgedAged, 80 and overCross-Sectional StudiesEnglandFemaleGlucocorticoidsHumansMaleMiddle AgedPolymyalgia RheumaticaPrimary Health CareSurveys and QuestionnairesGlucocorticoidsPatient involvementPolymyalgia rheumaticaResearch prioritiesSurveys and questionnaires

Identifiers

PMID30617599
PMCPMC6544756
OpenAlexW2910778558

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.