Evidence map›Paper›PMID 30616592›Full record

ArticleBMC geriatrics2019

Knowledge, help-seeking and efficacy to find respite services: an exploratory study in help-seeking carers of people with dementia in the context of aged care reforms.

L Phillipson, K Johnson, E Cridland, D Hall, C Neville, E Fielding, H Hasan

Abstract read
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In one paragraph

Article in BMC geriatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. 'A Moment for Me': The Role of Respite in Sustaining Mental Health Carers.International journal of mental health nursing · 2026
    Article
  2. Review
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Self-Efficacy Mediates Acculturation and Respite Care Knowledge of Immigrant Caregivers.International journal of environmental research and public health · 2021
    Article
  10. Article
  11. Patterns of Service Provision in Older People's Mental Health Care in Australia.International journal of environmental research and public health · 2020
    Article
  12. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

L PhillipsonSchool of Health and Society, Faculty of Social Sciences, University of Wollongong, Wollongong, Australia. lphillip@uow.edu.au.ORCID 0000-0003-2173-0291
K JohnsonAustralian Health Services Research Institute, University of Wollongong, Wollongong, Australia.
E CridlandAustralian Health Services Research Institute, University of Wollongong, Wollongong, Australia.
D HallAustralian Health Services Research Institute, University of Wollongong, Wollongong, Australia.
C NevilleSchool of Nursing and Midwifery, Faculty of Health, Engineering and Sciences, University of Southern Queensland, Toowoomba, Australia.
E FieldingDementia Centre for Research Collaboration, Faculty of Health, Queensland University of Technology, Brisbane, Australia.
H HasanAustralian Health Services Research Institute, University of Wollongong, Wollongong, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundResearch highlights the need for carers of people with dementia to acquire relevant and timely information to assist them to access appropriate respite services. Unfortunately, negative experiences of information-seeking can create additional stress for carers and contribute to delays in up-take, or not using respite services at all.

methodsCross-sectional survey data was collected from a convenience sample of n = 84 carers of older people with dementia living in the Illawarra-Shoalhaven region of NSW, Australia. We assessed knowledge, attitudes, information seeking behaviours, and unmet need for respite services in 2016, following national aged care reforms.

resultsOver the previous 12 months, 86% of carers sought respite service information. The majority (73%) of all carers reported an unmet need for respite services, and were relying on personal networks to provide support for respite information. Few utilised the new government gateway 'My Aged Care' phone line (11%) or website (25%). However, 35% used a pre-existing helpline to access short term or emergency respite. We found a preference for interpersonal information sources, including local doctor (65%), professionally and volunteer led carer support groups (49%), and family and friends (46%). Those using four or more information sources showed higher capacity to name local respite services. Respite service information seekers were more likely to be caring for someone with behavioural problems, to have received assistance to access services, and to have used respite services in the past 3 to 6 months.

conclusionsNew reforms in the Australian aged care sector have not adequately responded to the needs of carers of people with dementia for respite service information and support. Wider, community-based messaging promoting positive service options and the provision of active personal support is required to address the unmet need for respite in carers of people with dementia.

Indexed as

Health Knowledge, Attitudes, PracticePatient Acceptance of Health CareAdultAgedAged, 80 and overAustraliaCaregiversCross-Sectional StudiesDementiaFemaleHealth Care ReformHumansMaleMiddle AgedRespite CareSurveys and QuestionnairesCarersDementiaInformation seekingRespiteService useSystem reform

Identifiers

PMID30616592
PMCPMC6322308

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.