ArticleJournal of diabetes science and technology2019
Development of the Intercultural Diabetes Online Community Research Council: Codesign and Social Media Processes.
Article in Journal of diabetes science and technology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 27 citations in OpenAlex.
- The complexity of leadership in coproduction practices: a guiding framework based on a systematic literature review.BMC health services research · 2024Pooled it
- Meaningful engagement of lived experience in diabetes research and health service improvement: A rapid review of barriers to and enablers for community involvement among adults with type 2 diabetes.Diabetic medicine : a journal of the British Diabetic Association · 2026Review
- Citizen-Led Integrated Care in Rural Depopulation Areas: Addressing Depression and Frailty in Older Adults.Annals of geriatric medicine and research · 2026Article
- Community-Informed New Media-Based Knowledge Translation Addressing HIV Stigma Among the General Population and Health Care Providers in Louisville, Kentucky: A Clinical Brief.The Journal of the Association of Nurses in AIDS Care : JANAC · 2025Article
- Engaging people with lived experience on community advisory boards in community-based participatory research: a scoping review.International journal for equity in health · 2025Article
- Developing an Online Community Advisory Board (CAB) of Parents From Social Media to Co-Design an Human Papillomavirus Vaccine Intervention: Participatory Research Study.JMIR formative research · 2025Article
- Measuring Outcomes for Community Partner Engagement: The Case of the High-Fidelity Wraparound Program for Pediatric Type 1 Diabetes.Diabetes spectrum : a publication of the American Diabetes Association · 2025Article
- Citizen involvement in research on technological innovations for health, care or well-being: a scoping review.Health research policy and systems · 2024Article
- Combining CGM and an Online Peer Support Community for Hispanic Adults with T2D: A Feasibility Study.Journal of diabetes science and technology · 2022Article
- Examining a Continuous Glucose Monitoring Plus Online Peer Support Community Intervention to Support Hispanic Adults With Type 2 Diabetes: Protocol for a Mixed Methods Feasibility Study.JMIR research protocols · 2022Article
- Continuous Glucose Monitoring Plus an Online Peer Support Community Reinforces Healthy Behaviors in Hispanic Adults With Type 2 Diabetes.Diabetes spectrum : a publication of the American Diabetes Association · 2022Article
- Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study.JMIR pediatrics and parenting · 2021Article
- A rapid realist review of patient engagement in patient-oriented research and health care system impacts: part one.Research involvement and engagement · 2021Review
- Qualitative Content Analysis of Type 1 Diabetes Caregiver Blogs and Correlations With Caregiver Challenges and Successes.Journal of patient experience · 2020Article
- Social Media in the Diabetes Community: a Novel Way to Assess Psychosocial Needs in People with Diabetes and Their Caregivers.Current diabetes reports · 2020Review
- State of the Science: A Scoping Review and Gap Analysis of Diabetes Online Communities.Journal of diabetes science and technology · 2019Article
Corrections and comments
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Authors and funding
11 authors at 9 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThis case study describes the formation of the Intercultural Diabetes Online Community Research council (iDOCr) and community advisory board (CAB) to engage the diabetes community and researchers in the codesign of community-based participatory research (CBPR) to examine online peer support in type 2 diabetes (T2D).
methodSocial media engagement was the foundation for CBPR knowledge generation. During the project, the iDOCr council and CAB (n = 27) met quarterly via video conferencing and three times in person during national diabetes meetings. Data from four Twitter chats were used to explore the usefulness and utility of Twitter data to learn about concerns and priorities of the diabetes online community (DOC) and supported the evolution of iDOCr, the development of a research question and the design of a CBPR study.
resultsThe iDOCr project (1) created a diverse CAB; (2) raised awareness of iDOCr and online peer support, which resulted in support and trust from key opinion leaders within the DOC to enable future partnerships for research and funding; (3) engaged with English- and Spanish-speaking DOC users through social media; and (4) designed a CBPR study supported by Twitter chat data analyses.
conclusionsIntegrating the voice of people with diabetes (PWD) and the DOC in designing CBPR, through use of a CAB, ensures the most important and relevant research questions are asked. Additional research focused on online peer support may increase health care provider confidence in referring PWD to this low-cost and relatively accessible resource with the potential power to advance health.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.