ArticleHealth expectations : an international journal of public participation in health care and health policy2019
End-of-life priorities of older adults with terminal illness and caregivers: A qualitative consultation.
Article in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 3 syntheses or guidelines pooled it, 98 citations in OpenAlex.
- The Experience of Care in People With Palliative Needs and Their Families: A Qualitative Metasynthesis.Journal of clinical nursing · 2026Pooled it
- Effectiveness of interventions for informal caregivers of people with end-stage chronic illness: a systematic review.Systematic reviews · 2024Pooled it
- Outcomes of deprescribing interventions in older patients with life-limiting illness and limited life expectancy: A systematic review.British journal of clinical pharmacology · 2020Pooled it
- "There's a lot of unknowns": a thematic analysis of the experiences of young adults with cancer who died during a psychosocial intervention trial.BMC palliative care · 2025Trial
- Healthy days at home and prognosis of older adults with cancer and non-cancer serious life-limiting illnesses.BMC geriatrics · 2025Article
- Life, death, and ethics: medical and dental students' attitudes on assisted dying in Austria.BMC health services research · 2025Article
- A Mixed Methods Analysis of Standardized Documentation of Serious Illness Conversations Within an Electronic Health Record Module During Hospitalization.The American journal of hospice & palliative care · 2025Article
- Cancer Doesn't Know the Day of the Week: Temporal Trends in Day of Death.Research square · 2024Article
- Trajectories of Health-related quality of life in patients with Advanced Cancer during the Last Year of Life: findings from the COMPASS study.BMC palliative care · 2022Observational
- Important End-of-Life Topics among Latino Patients and Caregivers Coping with Advanced Cancer.International journal of environmental research and public health · 2022Article
- Palliative Care in Older People with Multimorbidities: A Scoping Review on the Palliative Care Needs of Patients, Carers, and Health Professionals.International journal of environmental research and public health · 2022Article
- [Prioritization of health resources in contexts of scarcity. SESPAS Report 2022].Gaceta sanitaria · 2022Review
- Concerns and potential improvements in end-of-life care from the perspectives of older patients and informal caregivers: a scoping review.BMC geriatrics · 2021Article
- Palliative and End-of-Life Care Service Models: To What Extent Are Consumer Perspectives Considered?Healthcare (Basel, Switzerland) · 2021Review
- End-of-life priorities of older adults with terminal illness and caregivers: A qualitative consultation.Health expectations : an international journal of public participation in health care and health policy · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors at 7 institutions in 2 countries.
Funding
Abstract
backgroundAs older adults approach the end-of-life (EOL), many are faced with complex decisions including whether to use medical advances to prolong life. Limited information exists on the priorities of older adults at the EOL.
objectiveThis study aimed to explore patient and family experiences and identify factors deemed important to quality EOL care.
methodA descriptive qualitative study involving three focus group discussions (n = 18) and six in-depth interviews with older adults suffering from either a terminal condition and/or caregivers were conducted in NSW, Australia. Data were analysed thematically.
resultsSeven major themes were identified as follows: quality as a priority, sense of control, life on hold, need for health system support, being at home, talking about death and competent and caring health professionals. An underpinning priority throughout the seven themes was knowing and adhering to patient's wishes.
conclusionOur study highlights that to better adhere to EOL patient's wishes a reorganization of care needs is required. The readiness of the health system to cater for this expectation is questionable as real choices may not be available in acute hospital settings. With an ageing population, a reorganization of care which influences the way we manage terminal patients is required.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.