ArticleMedicine, health care, and philosophy2019
Narrative methods for assessing "quality of life" in hand transplantation: five case studies with bioethical commentary.
Article in Medicine, health care, and philosophy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
What it found
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Who cites it
5 citing papers in PubMed.
- Narrative Medicine: theory, clinical practice and education - a scoping review.BMC health services research · 2024Article
- Ethical Considerations in Post-Mortem Sperm Retrieval: A Comprehensive Review.JBRA assisted reproduction · 2024Review
- A Single-Center Retrospective Evaluation of Decision-Making and Factors Motivating Hand Transplant Candidates.Progress in transplantation (Aliso Viejo, Calif.) · 2023Article
- Living with someone else's penis: The lived experiences of two South African penile allograft recipients: A descriptive phenomenological study.Annals of medicine and surgery (2012) · 2021Article
- "Finding oneself after critical illness": voices from the remission society.Medicine, health care, and philosophy · 2021Article
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Despite having paved the way for face, womb and penis transplants, hand transplantation today remains a small hybrid of reconstructive microsurgery and transplant immunology. An exceptionally limited patient population internationally (N < 200) complicates medical researchers' efforts to parse outcomes "objectively." Presumed functional and psychosocial benefits of gaining a transplant hand must be weighed in both patient decisions and bioethical discussions against the difficulty of adhering to post-transplant medications, the physical demands of hand transplant recovery on the patient, and the serious long-term health risks of immunosuppressant drugs. This paper relates five narratives of hand transplantation drawn from an oral history project to show how narrative methods can and should inform ethical evaluations and the clinical process of hand transplantation. The interviews with patients and their partners analyzed here lead us to suggest that qualitative accounts of patient experiences should be used to complement clinical case studies reported in medical journals and to help develop instruments to assess outcomes more systematically.
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Registered trials
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