ArticleResearch involvement and engagement2018
Involving young people in BRIGHTLIGHT from study inception to secondary data analysis: insights from 10 years of user involvement.
Article in Research involvement and engagement, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
24 citing papers in PubMed.
- Public involvement and co-design of longitudinal studies of sleep health alongside young people with rare genetic conditions.Research involvement and engagement · 2026Article
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- Parents of Children and Young People With Long-Term Physical Health Conditions-Experiences of Navigating School.Child: care, health and development · 2025Article
- When Research Evidence and Healthcare Policy Collide: Synergising Results and Policy into BRIGHTLIGHT Guidance to Improve Coordinated Care for Adolescents and Young Adults with Cancer.Healthcare (Basel, Switzerland) · 2025Article
- Article
- Evaluation of specialist cancer services for teenagers and young adults in England: interpreting BRIGHTLIGHT study results through the lens of young people with cancer.Research involvement and engagement · 2025Article
- Article
- "Meet us where we're at:" Towards engaging and inclusive research with young adults with a lived experience of cancer.Journal of clinical and translational science · 2025Article
- Conducting Patient-Oriented Research in Pediatric Populations: A Narrative Review.Children (Basel, Switzerland) · 2024Review
- Asking those who know their needs best: A framework for active engagement and involvement of childhood cancer survivors and parents in the process of psychosocial research-A workshop report.Cancer reports (Hoboken, N.J.) · 2024Article
- Qualitative Study Examining Attendance for Secondary School Pupils With Long-Term Physical Health Conditions.Continuity in education · 2024Article
- The INSCHOOL project: showcasing participatory qualitative methods derived from patient and public involvement and engagement (PPIE) work with young people with long-term health conditions.Research involvement and engagement · 2023Article
- Reporting involvement activities with children and young people in paediatric research: a framework analysis.Research involvement and engagement · 2023Article
- Research involvement and engagement of adolescent and young adults in a cancer trajectory: a 5-year experience from a patient support facility at a university hospital.Research involvement and engagement · 2023Article
- "We know that our voices are valued, and that people are actually going to listen": co-producing an evaluation of a young people's research advisory group.Research involvement and engagement · 2023Article
- A qualitative study on the involvement of adolescents and young adults (AYAs) with cancer during multiple research phases: "plan, structure, and discuss".Research involvement and engagement · 2022Article
- Setting international standards for patient and parent involvement and engagement in childhood, adolescent and young adult cancer research: A report from a European Collaborative Workshop.Cancer reports (Hoboken, N.J.) · 2022Article
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- The support and information needs of adolescents and young adults with cancer when active treatment ends.BMC cancer · 2020Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
plain english summaryYoung people with cancer are often described as 'hard to reach', 'difficult to engage' and/or 'vulnerable'. Consequently, they are often over looked for patient and public involvement activities. We set out to involve young people with cancer to work as co-researchers in the design of the largest ever study of young people with cancer, called BRIGHTLIGHT. In the 10 years since the BRIGHTLIGHT feasibility work began we have involved more than 1200 young people as co-researchers, collaborators, consultants and dissemination partners. We chronicle the key points of this 10-year journey, sharing our success, describing our challenges and the solutions we put in place; sharing also what worked and did not work. Here we share some of these experiences of involving young people in this research and offer some practical advice for those looking to do the same. ABSTRACT:
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