Evidence map›Paper›PMID 30593553›Full record

ArticleBMJ open2018

Validity and reliability of maternal recall of pregnancy history and service use among signing Deaf women: a cross-sectional descriptive study from South Africa.

Mayara Fontes Marx, Marion Heap, Margaret W Gichane, Leslie London

Abstract read
In one paragraph

Article in BMJ open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

4 authors.

Mayara Fontes MarxHealth and Human Rights Programme, School of Public Health and Family Medicine, Health Science Faculty, University of Cape Town, Cape town, South Africa.
Marion HeapHealth and Human Rights Programme, School of Public Health and Family Medicine, Health Science Faculty, University of Cape Town, Cape town, South Africa.
Margaret W GichaneDepartment of Health Behavior, Gillings School of Global Public Health, University of North Carolina, Chapel Hill, North Carolina, USA.
Leslie LondonHealth and Human Rights Programme, School of Public Health and Family Medicine, Health Science Faculty, University of Cape Town, Cape town, South Africa.

Funding

International Exchange Program for Minority StudentsT37MD001452 · NIMHD · MOUNT SINAI SCHOOL OF MEDICINE OF NYU · PI CLAUDIO, LUZ · 2005 to 2023
$4.9M
NIMHD NIH HHS T37 MD001452
6 · The paper itself

Abstract

introductionThere is little credible quantitative data on pregnancy histories and outcomes for disabled women in low-income and middle-income countries. The purpose of this study, based in Cape Town, South Africa, was to test the reliability and validity of maternal recall of pregnancy history and service use among a sample of Deaf women who use South African Sign Language (SASL).

methodsWe interviewed 42 signing Deaf women of childbearing age (18-49 years) in SASL using a structured questionnaire in July 2016. To assess reliability, seven participants (16% of the sample) were reinterviewed by different interviewers under the same conditions after 10-30 min. For the analysis we used (1) Cohen's kappa, an inter-rater statistical method, and (2) overall percentage agreement. Validity was explored by comparing the participants' pregnancy history to the Western Cape Provincial Health Data Centre (PHDC) database.

resultsThe reliability results showed that out of 19 questions 14 demonstrated substantial to perfect agreement kappa scores (kappa between 0.61 and 1) and 5 had the lowest kappa agreement scores (kappa <0.61). With respect to percentage agreement, participants provided identical responses in 87% cases. Overall, women provided more reliable responses to pregnancy outcomes compared with demographic information. Validity results showed that 29 out of 35 Deaf women provided survey responses that matched or nearly matched (83% agreement) the PHDC database for birth history and delivery location.

conclusionThis study suggests that for this sample of signing Deaf women recall of pregnancy history and service use is reliable and valid. Extending this approach to other similar populations will require further research, but it is important that methods to access hard-to-reach disabled populations are developed so that health system responsiveness to marginal populations can be based on robust evidence.

Indexed as

Persons with Hearing DisabilitiesReproductive HistoryText MessagingAdultCross-Sectional StudiesFemaleHumansMaternal Health ServicesMental RecallMiddle AgedOutcome Assessment, Health CarePregnancyPregnancy OutcomeReproducibility of ResultsSouth AfricaSurveys and Questionnairesdeafdisabilitymaternitypregnancyvalidity and reliability

Identifiers

PMID30593553
PMCPMC6318538

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.