ArticlePloS one2018
Perceived stigma of leprosy among community members and health care providers in Lalitpur district of Nepal: A qualitative study.
Article in PloS one, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 2 of them syntheses that pooled it.
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Who cites it
33 citing papers in PubMed, 2 syntheses or guidelines pooled it, 96 citations in OpenAlex.
- Stigma towards leprosy across seven life domains in Indonesia: a qualitative systematic review.BMJ open · 2022Pooled it
- Individual and community factors determining delayed leprosy case detection: A systematic review.PLoS neglected tropical diseases · 2021Pooled it
- Factors associated with disability among patients with leprosy: a scoping review.BMC infectious diseases · 2026Article
- Cultural Mechanisms of Leprosy-Related Stigma: A Gendered Analysis Using the What Matters Most Framework in Far-Western Nepal.Qualitative health research · 2026Article
- "It becomes more difficult when people don't empathize with us": COVID-19-related stigmatization experienced by survivors in Nepal.PloS one · 2026Article
- Fostering empowerment: Transition from self-help groups to cooperatives in leprosy-affected communities in Nepal.PLoS neglected tropical diseases · 2025Article
- Strengthening leprosy control through capacity building of allied health workers: A pre-post design.Journal of family medicine and primary care · 2025Article
- Leprosy stigma in the healthcare setting: Lived experiences of persons affected by leprosy in Niger.PLoS neglected tropical diseases · 2025Article
- QUALITY OF LIFE AND STIGMA AMONG PEOPLE LIVING WITH LEPROSY IN SOUTHWESTERN AND NORTH-CENTRAL NIGERIA.Annals of Ibadan postgraduate medicine · 2025Article
- Quality of life and stigma among persons affected by leprosy or buruli ulcer in Nigeria: a community-based cross-sectional study.BMC public health · 2025Article
- Article
- Participatory development of Indonesia's national action plan for zero leprosy: strategies and interventions.Frontiers in public health · 2025Article
- Implementation fidelity in leprosy care and support for disability prevention and management in Rupandehi, Nepal: A qualitative study.PloS one · 2025Article
- Experiences of Patients Living in a Unique Leprosy Hospice in Greece: An Interpretative Phenomenological Analysis.Cureus · 2024Article
- Leprosy in Spain: A Descriptive Study of Admissions at Fontilles Sanatorium between 1909 and 2020.Tropical medicine and infectious disease · 2024Article
- Body map stories from Colombia: experiences of people affected by leprosy and the influence of peers during diagnosis and treatment.International journal for equity in health · 2024Article
- Experiences of social stigma of people living with Hansen's disease in Brazil: silencing, secrets and exclusion.International health · 2024Article
- Epidemiological, clinical, and geographical characterization of Leprosy in the County of Santarém-Pará: Insights for effective control and targeted intervention.PLoS neglected tropical diseases · 2024Article
- Neglect of mental health issues and lack of integration of psychosocial interventions in Zero Leprosy Roadmaps: A critical oversight.PLOS mental health · 2024Article
- Validity and reliability of local endemic language version of the SARI Sigma Scale questionnaire for assessing stigma in leprosy patients.Frontiers in public health · 2024Article
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Authors and funding
9 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundLeprosy remains a major stigmatizing condition. Stigma is a dynamic process resulting from the interaction between physical attributes caused by leprosy and the existing stereotypes in a community. Leprosy has pervasive impacts on all areas of life including psychosocial burden to an individual, social interaction, marriage, and employment. These impacts vary and are largely dependent on a particular culture and community. The main objective of this study was to explore the perceived stigma of leprosy amongst community members and health care providers in Lalitpur district of Nepal.
methodsA total of six focused group discussions (FGDs) with 43 participants from a community living close to Anandaban Leprosy Hospital and ten semi structured interviews (SSIs) with health care providers were conducted between October and December 2016. An interview guide was used for the FGDs and SSIs. All qualitative data were transcribed and translated into English and were thematically analyzed using Atlas.ti software.
resultsVisible deformities due to leprosy was one of the major contributing factors for stigma. Stigma was further exacerbated by an attitude to conceal the disease due to perceived fear of potential discrimination. While over the years, stigma was felt to be decreasing, various aspects of life were still affected by leprosy stigma including marriage, employment and social interaction. This was largely attributed to leprosy and its consequences, specifically the disability and deformity caused by leprosy.
conclusionLeprosy was still perceived to be feared and concealed because of potential discrimination, even within the community that was close to a long established leprosy hospital. Various aspects such as marriage, employment and social interaction were still affected by the stigma which was strongly associated with visible deformities. In addition to ongoing rehabilitation and stigma reduction programs, integrating strategies such as community engagement wherein community and leprosy affected person jointly take a role in stigma reduction programs can be helpful.
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