Evidence map›Paper›PMID 30588481›Full record

ArticleERJ open research2018

Still Fighting for Breath: a patient survey of the challenges and impact of severe asthma.

Paraskevi Katsaounou, Mikaela Odemyr, Otto Spranger, Michael E Hyland, Claus Kroegel, Lorena Garcia Conde, Robin Gore, Francesco Menzella, Christian Domingo Ribas, Mario Morais-Almeida and 2 more

Erratum issuedAbstract read
In one paragraph

Article in ERJ open research, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 10 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Article
  4. Inhaled Corticosteroid/Long-Acting βAdvances in therapy · 2026
    Review
  5. Review
  6. Article
  7. Article
  8. Article
  9. Perspectives on decisions for treatment and care in severe asthma.The World Allergy Organization journal · 2021
    Review
  10. Living well with severe asthma.Breathe (Sheffield, England) · 2019
    Review
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

12 authors.

Paraskevi KatsaounouFirst ICU Evaggelismos Hospital, National and Kapodistrian University of Athens, Athens, Greece.ORCID https://orcid.org/0000-0002-8736-619X
Mikaela OdemyrEuropean Federation of Allergy and Airways Diseases Patients' Associations, Brussels, Belgium.
Otto SprangerGlobal Allergy and Asthma Patient Platform, Vienna, Austria.
Michael E HylandSchool of Psychology, University of Plymouth, Plymouth, UK.
Claus KroegelDept of Pneumology and Allergy/Immunology, Medical University Hospital Jena, Jena, Germany.
Lorena Garcia CondeNovartis Pharma AG, Basel, Switzerland.
Robin GoreAddenbrookes Hospital, Cambridge University Hospitals NHS Foundation Trust, Cambridge, UK.
Francesco MenzellaSpecialist Medicine Dept, Pneumology Unit, Arcispedale Santa Maria Nuova, Reggio Emilia, Italy.ORCID https://orcid.org/0000-0003-3950-5789
Christian Domingo RibasPulmonary Service, Corporació Sanitària Parc Taulí (Sabadell), Dept of Medicine, Universitat Autònoma de Barcelona (UAB), Barcelona, Spain.
Mario Morais-AlmeidaAllergy Center, CUF Descobertas Hospital, Lisbon, Portugal.
Matthias GasserGfK Switzerland AG, Basel, Switzerland.
Ismail KasujeeNovartis Pharma AG, Basel, Switzerland.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

We conducted a large global survey, Still Fighting for Breath, in patients with severe persistent asthma, 10 years after the Fighting for Breath survey to assess the impact of disease on patients' lives and to determine if control and management have changed in recent years. Data were collected from 1333 adults (aged >18 years) and caregivers of children (aged 6-17 years) with severe persistent asthma from nine countries through an online survey conducted in 2016 by GfK. A decade after the first survey, our results showed that the impact of severe asthma has not changed significantly and a high proportion of patients with severe asthma remain inadequately controlled. A large discrepancy was observed between the proportion of patients who perceived their asthma to be well controlled (42%) and the proportion of patients who reported to be well controlled as per the Global Initiative for Asthma (GINA) assessment (6%). Although most patients perceived their asthma to be controlled, many experienced frequent symptoms that affected their daily lives. Thus, there is a need for improved management (support and strategies) of patients with severe persistent asthma and improved coordination of efforts that would enable these patients to achieve better disease control.

Identifiers

PMID30588481
PMCPMC6302210

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.