Evidence map›Paper›PMID 30587937›Full record

ArticlePatient preference and adherence2018

A qualitative study on the educational needs of young people with chronic conditions transitioning from pediatric to adult care.

Maxime Morsa, Pierre Lombrail, Bernard Boudailliez, Cécile Godot, Vincent Jeantils, Rémi Gagnayre

Abstract read
In one paragraph

Article in Patient preference and adherence, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

6 authors.

Maxime MorsaLaboratory of Education and Health Practices (EA3412), Université Paris 13, Bobigny, Paris, France, maximemorsa@hotmail.com.
Pierre LombrailLaboratory of Education and Health Practices (EA3412), Université Paris 13, Bobigny, Paris, France, maximemorsa@hotmail.com.
Bernard BoudailliezPediatric Department, Amiens University Hospital Center, Amiens, France.
Cécile GodotDepartment of Endocrinology, Diabetology and Gynecology of Children and Adolescents, Necker Hospital, AP-HP, Paris, France.
Vincent JeantilsInfectious Diseases Unit, Jean Verdier Hospital, AP-HP, Paris, France.
Rémi GagnayreLaboratory of Education and Health Practices (EA3412), Université Paris 13, Bobigny, Paris, France, maximemorsa@hotmail.com.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesAlthough patient education is recommended to facilitate the transition from pediatric to adult care, a consensus has not been reached for a particular model. The specific skills needed for the transition to help in facilitating the life plans and health of young people are still poorly understood. This study explored the educational needs of young people with diverse chronic conditions during their transition from pediatric to adult care.

methodsQualitative semi-structured interviews were conducted with 17 young people with chronic conditions. A thematic analysis was conducted to examine the data.

resultsFive themes emerged from the data, identified through the following core topics: learning how to have a new role, learning how to adopt a new lifestyle, learning how to use a new health care service, maintaining a dual relationship with pediatric and adult care, and having experience sharing with peers.

conclusionA shift in perspective takes place when the transition is examined through the words of young people themselves. To them, moving from pediatric to adult care is not viewed as the heart of the process. It is instead a change among other changes. In order to encourage a transition in which the needs of young people are met, educational measures could focus on the acquisition of broad skills, while also being person-centered.

Indexed as

adolescencechronic diseasepatient educationpediatricstransition

Identifiers

PMID30587937
PMCPMC6296184

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.