Trial reportJournal of Alzheimer's disease : JAD2019
Identifying Unmet Needs of Family Dementia Caregivers: Results of the Baseline Assessment of a Cluster-Randomized Controlled Intervention Trial.
Trial report in Journal of Alzheimer's disease : JAD, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 37 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
37 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The early impacts of COVID-19 on unpaid carers of people living with dementia: part II of a mixed-methods systematic review.Aging & mental health · 2023Pooled it
- The effectiveness of educational interventions in the community that aim to improve informal carers knowledge of dementia anatomy, physiology, progression, and impact on behavior: a systematic review.Frontiers in dementia · 2023Pooled it
- Identifying Unmet Needs of Informal Dementia Caregivers in Clinical Practice: User-Centered Development of a Digital Assessment Tool.JMIR aging · 2025Trial
- Videoconference-Delivered Acceptance and Commitment Therapy for Family Caregivers of People With Dementia: Pilot Randomized Controlled Trial.JMIR formative research · 2025Trial
- Caregiving management needs and predictors for family caregivers of persons with dementia: a cross-sectional study.BMC geriatrics · 2024Trial
- Embedding Caregiver Support Within Adult Day Services: Outcomes of a Multisite Trial.The Gerontologist · 2024Trial
- Healthcare Needs Patterns and Pattern-Predicting Factors in Dementia: Results of the Comprehensive, Computerized Unmet Needs Assessment from the Randomized, Controlled Interventional Trial InDePendent.Journal of Alzheimer's disease : JAD · 2024Trial
- Effects of a Video-based Intervention on Caregiver Confidence for Managing Dementia Care Challenges: Findings from the FamTechCare Clinical Trial.Clinical gerontologistTrial
- Validity testing of the Benjamin Rose Unmet Need Instrument: a comprehensive measure for dementia caregiving.The Gerontologist · 2026Article
- Understanding the family caregivers' needs in late-stage dementia: a qualitative perspective to inform policy action.BMC geriatrics · 2026Article
- Measurement instruments for assessing support needs of dementia caregivers: a COSMIN-based systematic review protocol.BMJ open · 2026Article
- The cost of non-drug interventions that improve function and reduce dementia-related behaviors.BMC geriatrics · 2025Article
- Predicting hospice eligibility among dementia patients using language models.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Unmet Needs in Dementia Care: The Predictive Role of Caregiver Challenges.International journal of geriatric psychiatry · 2025Article
- Dementia in primary care: a qualitative study with general practitioners and caregivers with and without migration backgrounds.BMC primary care · 2025Article
- Effectiveness of Chatbot interventions for reducing caregiver burden: Protocol for a systematic review and meta-analysis.MethodsX · 2025Article
- The use of outpatient support services: Differences between people with mild cognitive impairment and people with mild to moderate dementia.Journal of Alzheimer's disease : JAD · 2025Article
- Long-Term Caregiving Impact and Self-Care Strategies in Family Caregivers of People with Neuropsychiatric Disorders: A Mixed-Method Study.Diseases (Basel, Switzerland) · 2024Article
- The challenge of identifying family carers in general practice at an early stage and measuring their burden: A scoping review of possible tools and their actual use.Journal of family medicine and primary care · 2024Article
- Supporting caregivers of people with dementia: insights from Demensia KITA mobile application online content development.Scientific reports · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
14 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCaregivers providing informal care for people with dementia (PwD) often report unmet needs, burden, and health impairments. Optimal support for family dementia caregivers will likely benefit from better understanding and assessment of the prevalence and types of caregivers' unmet needs and associated socio-demographic and clinical characteristics.
objectiveThe present study investigates 1) the number and types of caregivers' unmet needs, 2) socio-demographic and clinical characteristics of both PwD and caregivers, and 3) caregivers' burden and health-related outcomes that are related to caregivers' unmet needs.
methodsThe present analyses are based on cross-sectional data of n = 226 dyads of caregivers and their community-dwelling PwD participating in a comprehensive standardized, computer-based caregivers' needs assessment within a general practitioner (GP)-based, cluster-randomized intervention trial.
resultsA total of n = 505 unmet needs were identified for n = 171 caregivers from the intervention group at baseline. Only 24.3% caregivers reported no unmet need (n = 55), whereas 75.7% caregivers had at least one unmet need (n = 171). Caregivers had on average 2.19 unmet needs (mean = 2.19, SD = 2.15). Specifically, 53.1% of caregivers had one up to three unmet needs (n = 120), 18.6% (n = 42) had three up to six unmet needs, and 4.0% (n = 9) had more than six unmet needs. DISCUSSION: Our results underline the importance of a comprehensive needs assessment for family dementia caregivers to develop and implement concepts that can provide family dementia caregivers with optimal support.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.