Evidence map›Paper›PMID 30581014›Full record

ArticlePatient education and counseling2019

Agents of empathy: How medical interpreters bridge sociocultural gaps in genomic sequencing disclosures with Spanish-speaking families.

Amanda M Gutierrez, Emily E Statham, Jill O Robinson, Melody J Slashinski, Sarah Scollon, Katie L Bergstrom, Richard L Street, D Williams Parsons, Sharon E Plon, Amy L McGuire

Abstract read
In one paragraph

Article in Patient education and counseling, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Priorities to Promote Participant Engagement in the Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2023
    Article
  8. Barriers to Equity in Pediatric Hearing Health Care: A Review of the Evidence.Perspectives of the ASHA special interest groups · 2022
    Article
  9. Article
  10. Article
  11. Article
  12. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Amanda M GutierrezCenter for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, USA. Electronic address: ag3@bcm.edu.
Emily E StathamCenter for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, USA. Electronic address: estatham@bwh.harvard.edu.
Jill O RobinsonCenter for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, USA. Electronic address: jill.robinson@bcm.edu.
Melody J SlashinskiSchool of Public Health & Health Sciences, University of Massachusetts at Amherst, Amherst, USA. Electronic address: mslashinski@umass.edu.
Sarah ScollonDepartment of Pediatrics, Baylor College of Medicine, Houston, USA; Texas Children's Cancer Center, Texas Children's Hospital, Houston, USA. Electronic address: sxscollo@txch.org.
Katie L BergstromDepartment of Pediatrics, Baylor College of Medicine, Houston, USA; Texas Children's Cancer Center, Texas Children's Hospital, Houston, USA. Electronic address: klbergst@txch.org.
Richard L StreetDepartment of Communication, Texas A&M University, College Station, USA; Department of Medicine, Baylor College of Medicine, Houston, USA; Center for Innovation in Healthcare Quality, Effectiveness, & Safety, Michael E. DeBakey Veterans Affairs Medical Center, Houston, USA. Electronic address: r-street@tamu.edu.
D Williams ParsonsDepartment of Pediatrics, Baylor College of Medicine, Houston, USA; Texas Children's Cancer Center, Texas Children's Hospital, Houston, USA. Electronic address: dwparson@bcm.edu.
Sharon E PlonDepartment of Pediatrics, Baylor College of Medicine, Houston, USA; Texas Children's Cancer Center, Texas Children's Hospital, Houston, USA. Electronic address: splon@bcm.edu.
Amy L McGuireCenter for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, USA. Electronic address: amcguire@bcm.edu.

Funding

Measuring Perceptions of Utility of Clinical Genome Sequencing: Instrument Testing and ValidationU01HG006485 · NHGRI · BAYLOR COLLEGE OF MEDICINE · PI MCGUIRE, AMY L, PARSONS, DONALD W. · 2012 to 2021
$22.1M
NHGRI NIH HHS U01 HG006485
6 · The paper itself

Abstract

objectivesTo describe how linguistic tools used by interpreters during return of genomic sequencing results may have impacted communication with Spanish-speaking families, and to discuss the implications for the role of medical interpreters.

methodsUsing discourse analysis, we identified and categorized the various ways hospital-based interpreters adapted clinicians' language in 37 audio-recorded sessions in which Spanish-speaking parents participating in a clinical trial received their child's genomic sequencing results from English-speaking clinicians.

resultsWe found that interpreters adapted clinicians' statements using five empathic linguistic tools: contextualization, encouragement, checking comprehension, endearment, and softening. Interpreters used an average of four linguistic tools per session, with contextualization and encouragement being the most frequently used.

conclusionsInterpreters used empathic linguistic tools to alter clinicians' statements when communicating genomic information to Spanish-speaking families. Our findings demonstrate the critical role of interpreters as cultural mediators and facilitators of understanding for Spanish-speaking families. PRACTICE IMPLICATIONS: This study expands upon the definition of clinical empathy in interpreter-mediated sessions. Our findings suggest that revisions of standards of medical interpretation practice may be warranted regarding interpreters' ability to adapt clinicians' language in a culturally sensitive manner during interpretation.

Indexed as

Allied Health PersonnelCultural CompetencyEmpathyGenetic CounselingLanguageMultilingualismCommunicationCommunication BarriersFemaleGenomicsHispanic or LatinoHumansLinguisticsPhysician-Patient RelationsTranslatingCommunication barriersCultural competencyEmpathyGeneticsHealthcare disparitiesLimited English proficiencySpanish-speakers

Identifiers

PMID30581014
PMCPMC7197396

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.