ArticlePatient education and counseling2019
When chemotherapy fails: Emotionally charged experiences faced by family caregivers of patients with advanced cancer.
Article in Patient education and counseling, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed.
- Effects of family-based dignity intervention and expressive writing on anticipatory grief in family caregivers of patients with cancer: a randomized controlled trial.BMC psychiatry · 2023Trial
- Needs of Rural Caregivers of Patients With Cancer: A Scoping Review of Evidence From North America, Europe, and Australia.Psycho-oncology · 2026Article
- Caregiver guilt as an underrecognised burden in family cancer caregiving: a scoping review and implications for palliative care support.BMC palliative care · 2026Article
- Poor mental health days and depressive disorders by informal cancer patient caregiver status: BRFSS 2022-23.Research square · 2026Article
- Experiences of the older spousal caregivers of patients with cancer during palliative chemotherapy: a qualitative descriptive study.BMC palliative care · 2023Article
- A qualitative exploration of the dynamics of guilt experience in family cancer caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Ambiguous loss in family caregivers of loved ones with cancer, a synthesis of qualitative studies.Journal of cancer survivorship : research and practice · 2023Review
- Analysis of Caregiver Burden Expressed in Social Media Discussions.International journal of environmental research and public health · 2023Article
- Exploring the psychological and religious perspectives of cancer patients and their future financial planning: a Q-methodological approach.BMC palliative care · 2022Article
- Exploring Experiences of Bereaved Caregivers of Older Adult Patients With Acute Myeloid Leukemia.Clinical journal of oncology nursing · 2022Article
- Article
- Dealing with Family Conflicts in Decision-making in End-of-Life Care of Advanced Cancer Patients.Current oncology reports · 2021Review
- Discussing Prognosis with Empathy to Cancer Patients.Current oncology reports · 2021Review
- Patient and caregiver agreement on prognosis estimates for older adults with advanced cancer.Cancer · 2021Article
- Cancer caregivers' experiences of prognosis in Australia: a qualitative interview study.BMJ open · 2020Article
- COPD at the end of life: Predictors of the emotional distress of patients and their family caregivers.PloS one · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
objectiveTo explore family caregivers' emotional experiences while caring for patients with advanced cancer and navigating distressing information, awareness of dying, and difficult decisions.
methodsQualitative descriptive study of semi-structured interviews with 92 bereaved caregivers of patients with advanced cancer. Interviews explored caregivers' experiences as patients transitioned out of active cancer treatment and neared the end of life.
resultsIncluded in caregivers' characterization of this transition time were three particularly emotionally charged experiences. The first occurred when caregivers felt jolted into awareness that patients were dying.They were startled to realize that patients would die sooner than expected; some expressed frustration that they had not been adequately warned. In the second, caregivers felt conflicted when involved in decisions that pitted patients' preferences against what caregivers felt patients needed, resulting in ambivalence, guilt, and grief. Thirdly, caregivers who felt they did their best for patients expressed fulfillment and gratitude.
conclusionCaregivers of patients with advanced cancer face unique, emotionally charged experiences that can lead to distress and affect care at the end of life. PRACTICE IMPLICATIONS: Awareness of these situations may help oncology teams to provide sufficient guidance and support, partner with caregivers to clarify patients' needs, and deliver higher quality care.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.