ArticleEuropean journal of human genetics : EJHG2019
Communication about genetic testing with breast and ovarian cancer patients: a scoping review.
Article in European journal of human genetics : EJHG, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
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Who cites it
25 citing papers in PubMed.
- Patients' perceptions and practices of informing relatives: a qualitative study within a randomised trial on healthcare-assisted risk disclosure.European journal of human genetics : EJHG · 2024Trial
- Development of a web-based, theory-guided narrative intervention for women at elevated risk for breast cancer.Patient education and counseling · 2023Trial
- Information-seeking experiences during genetic testing and counseling: a qualitative study of patients at high risk for hereditary breast cancer.BMC cancer · 2026Article
- Developing the MyCancerGene Digital Health Portal to Improve Patients' Understanding of Germline Cancer Genetic Test Results: Development, User, and Usability Testing Study.JMIR formative research · 2025Article
- Examining BRCA Previvors' Social Media Content Creation as a Form of Self and Community Care: Qualitative Interview Study.Journal of medical Internet research · 2025Article
- The breast cancer genetic testing experience: probing the potential utility of an online decision aid in risk perception and decision making.BMC cancer · 2025Article
- Understanding Genetic Screening: Harnessing Health Information to Prevent Disease Risks.International journal of medical sciences · 2025Review
- Information needs persist after genetic counseling and testing for BRCA1/2 and Lynch Syndrome.Breast cancer research and treatment · 2024Article
- Article
- "Where do I go? Who do I go to?": BRCA Previvors, genetic counselors and family planning.PEC innovation · 2023Article
- Genetic counseling and testing for females at elevated risk for breast cancer: Protocol for the randomized controlled trial of the Know Your Risk intervention.Contemporary clinical trials · 2023Article
- Experience with a nurse-driven genetic counseling pathway of Italian women with uninformative BRCA test result.Journal of genetic counseling · 2023Article
- Development and Validation of the Missed Nursing Care Tool for Pre-Operative Patients with Lung Cancer in China.Patient preference and adherence · 2023Article
- Assessment of psychosocial difficulties by genetic clinicians and distress in women at high risk of breast cancer: a prospective study.European journal of human genetics : EJHG · 2022Observational
- Consistency of variant interpretations among bioinformaticians and clinical geneticists in hereditary cancer panels.European journal of human genetics : EJHG · 2022Article
- Understanding the Information Needs of Patients With Ovarian Cancer Regarding Genetic Testing to Inform Intervention Design: Interview Study.JMIR cancer · 2022Article
- Development of a plain-language guide for discussing breast cancer genetic counseling and testing with patients with limited health literacy.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Intrafamilial communication of hereditary breast and ovarian cancer genetic information in Italian women: towards a personalised approach.European journal of human genetics : EJHG · 2021Article
- Factors Influencing Discussion of Cancer Genetic Testing with Health-Care Providers in a Population-Based Survey.Public health genomics · 2021Article
- Should All Individuals Be Screened for Genetic Predisposition to Cancer?Genetics research · 2021Review
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
Genetic testing of patients with cancer is increasingly offered to guide management, resulting in a growing need for oncology health professionals to communicate genetics information and facilitate informed decision-making in a short time frame. This scoping review aimed to map and synthesise what is known about health professionals' communication about genetic testing for hereditary breast and ovarian cancer with cancer patients. Four databases were systematically searched using a recognised scoping review method. Areas and types of research were mapped and a narrative synthesis of the findings was undertaken. Twenty-nine papers from 25 studies were included. Studies were identified about (i) information needs, (ii) process and content of genetic counselling, (iii) cognitive and emotional impact, including risk perception and recall, understanding and interpretation of genetic test results, and anxiety and distress, (iv) patients' experiences, (v) communication shortly after diagnosis and (vi) alternatives to face-to-face genetic counselling. Patients' need for cancer-focused, personalised information is not always met by genetic counselling. Genetic counselling tends to focus on biomedical information at the expense of psychological support. For most patients, knowledge is increased and anxiety is not raised by pre-test communication. However, some patients experience anxiety and distress when results are disclosed, particularly those tested shortly after diagnosis who are unprepared or unsupported. For many patients, pre-test communication by methods other than face-to-face genetic counselling is acceptable. Research is needed to identify patients who may benefit from genetic counselling and support and to investigate communication about hereditary breast and ovarian cancer by oncology health professionals.
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