Evidence map›Paper›PMID 30573659›Full record

ArticleClinical journal of the American Society of Nephrology : CJASN2019

Patient and Caregiver Priorities for Outcomes in Peritoneal Dialysis: Multinational Nominal Group Technique Study.

Karine E Manera, David W Johnson, Jonathan C Craig, Jenny I Shen, Lorena Ruiz, Angela Yee-Moon Wang, Terence Yip, Samuel K S Fung, Matthew Tong, Achilles Lee and 14 more

Abstract read
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In one paragraph

Article in Clinical journal of the American Society of Nephrology : CJASN, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 47 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
47citing papers in PubMed, 4 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

47 citing papers in PubMed, 4 syntheses or guidelines pooled it.

  1. Pooled it
  2. Interventions for fatigue in people with kidney failure requiring dialysis.The Cochrane database of systematic reviews · 2023
    Pooled it
  3. Pooled it
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  16. Epidemiology of peritoneal dialysis outcomes.Nature reviews. Nephrology · 2022
    Review
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  18. Article
  19. Work status and work ability of patients receiving kidney replacement therapy: results from a European survey.Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association · 2022
    Article
  20. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

24 authors.

Karine E ManeraSydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia.
David W JohnsonDepartment of Nephrology, Princess Alexandra Hospital, Brisbane, Australia.
Jonathan C CraigSydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia.
Jenny I ShenDivision of Nephrology and Hypertension, Los Angeles Biomedical Research Institute at Harbor, University of California, Los Angeles Medical Center, Torrance, California.
Lorena RuizDivision of Nephrology and Hypertension, Los Angeles Biomedical Research Institute at Harbor, University of California, Los Angeles Medical Center, Torrance, California.
Angela Yee-Moon WangDepartment of Medicine, Queen Mary Hospital, University of Hong Kong, Hong Kong, China.
Terence YipDepartment of Medicine, Tung Wah Hospital, Hong Kong, China.
Samuel K S FungDivision of Nephrology, Department of Medicine and Geriatrics, Jockey Club Nephrology and Urology Centre, Princess Margaret Hospital, Kowloon, Hong Kong, China.
Matthew TongDepartment of Medicine and Geriatrics, Pok Oi Hospital, Yuen Long, Hong Kong, China.
Achilles LeeDepartment of Medicine and Geriatrics, Tuen Mun Hospital, Hong Kong, China.
Yeoungjee ChoDepartment of Nephrology, Princess Alexandra Hospital, Brisbane, Australia.
Andrea K ViecelliDepartment of Nephrology, Princess Alexandra Hospital, Brisbane, Australia.
Benedicte SautenetSydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia.
Armando Teixeira-PintoSydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia.
Edwina Anne BrownImperial College Renal and Transplant Centre, Hammersmith Hospital, London, UK.
Gillian BrunierDivision of Nephrology, Sunnybrook Health Sciences Centre (retired), Toronto, Ontario, Canada.
Jie DongRenal Division, Department of Medicine, Peking University First Hospital, Beijing, China.
Tony DunningSouth Bank Technical and Further Education, Brisbane, Australia.
Rajnish MehrotraDivision of Nephrology, Department of Medicine, Kidney Research Institute and Harborview Medical Center, University of Washington, Seattle, Washington.
Saraladevi NaickerDepartment of Internal Medicine, School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.
Roberto Pecoits-FilhoSchool of Medicine, Pontifícia Universidade Católica do Paraná, Curitiba, Paraná, Brazil.
Jeffrey PerlDivision of Nephrology, Department of Medicine, St. Michael's Hospital, University of Toronto, Toronto, Ontario, Canada; and.
Martin WilkieDepartment of Nephrology, Sheffield Teaching Hospitals National Health Service Foundation Trust, Sheffield, UK.
Allison TongSydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia.

Funding

Trajectories of Adherence to Cardiovascular Medications in Patients on DialysisK23DK103972 · NIDDK · LUNDQUIST INSTITUTE FOR BIOMEDICAL INNOVATION AT HARBOR-UCLA MEDICAL CENTER · PI SHEN, JENNY I · 2015 to 2019
$934k
NIDDK NIH HHS K23 DK103972
6 · The paper itself

Abstract

BACKGROUND AND

objectivesThe absence of accepted patient-centered outcomes in research can limit shared decision-making in peritoneal dialysis (PD), particularly because PD-related treatments can be associated with mortality, technique failure, and complications that can impair quality of life. We aimed to identify patient and caregiver priorities for outcomes in PD, and to describe the reasons for their choices. DESIGN, SETTING, PARTICIPANTS, & MEASUREMENTS: Patients on PD and their caregivers were purposively sampled from nine dialysis units across Australia, the United States, and Hong Kong. Using nominal group technique, participants identified and ranked outcomes, and discussed the reasons for their choices. An importance score (scale 0-1) was calculated for each outcome. Qualitative data were analyzed thematically.

resultsAcross 14 groups, 126 participants (81 patients, 45 caregivers), aged 18-84 (mean 54, SD 15) years, identified 56 outcomes. The ten highest ranked outcomes were PD infection (importance score, 0.27), mortality (0.25), fatigue (0.25), flexibility with time (0.18), BP (0.17), PD failure (0.16), ability to travel (0.15), sleep (0.14), ability to work (0.14), and effect on family (0.12). Mortality was ranked first in Australia, second in Hong Kong, and 15th in the United States. The five themes were serious and cascading consequences on health, current and impending relevance, maintaining role and social functioning, requiring constant vigilance, and beyond control and responsibility.

conclusionsFor patients on PD and their caregivers, PD-related infection, mortality, and fatigue were of highest priority, and were focused on health, maintaining lifestyle, and self-management. Reporting these patient-centered outcomes may enhance the relevance of research to inform shared decision-making.

Indexed as

Patient Outcome AssessmentPeritoneal DialysisAdolescentAdultAgedAged, 80 and overAustraliaCaregiversFemaleGroup ProcessesHong KongHumansMaleMiddle AgedPatient-Centered CarePatient Preferenceblood pressureCaregiversDecision MakingLife StyleOutcomesPatient Participationperitoneal dialysisquality of lifeSelf-ManagementWakefulness

Identifiers

PMID30573659
PMCPMC6364541

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.