Evidence map›Paper›PMID 30571599›Full record

ArticleJournal of the American Heart Association2018

"It's Like They Forget That the Word 'Health' Is in 'Home Health Aide'": Understanding the Perspectives of Home Care Workers Who Care for Adults With Heart Failure.

Madeline R Sterling, Ariel F Silva, Peggy B K Leung, Amy L Shaw, Emma K Tsui, Christine D Jones, Laura Robbins, Yanira Escamilla, Ann Lee, Faith Wiggins and 5 more

Erratum issuedOpen access · goldAbstract read
In one paragraph

Article in Journal of the American Heart Association, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 44 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
44citing papers in PubMed, 1 pooled it
3.2field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

44 citing papers in PubMed, 1 synthesis or guideline pooled it, 61 citations in OpenAlex.

  1. Pooled it
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  11. When Do Paid Caregivers Support the Health of Older Adults? Geriatrician Perspectives.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025
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  19. Does Connectedness Matter? The Association Between Mutuality and Job Satisfaction Among Home Health Aides Caring for Adults With Heart Failure.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023
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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

15 authors at 4 institutions in 1 country.

Madeline R Sterling1 Division of General Internal Medicine Department of Medicine Weill Cornell Medicine New York NY.
Ariel F Silva1 Division of General Internal Medicine Department of Medicine Weill Cornell Medicine New York NY.
Peggy B K Leung1 Division of General Internal Medicine Department of Medicine Weill Cornell Medicine New York NY.
Amy L Shaw2 Division of Geriatrics and Palliative Medicine Department of Medicine Weill Cornell Medicine New York NY.
Emma K Tsui3 Department of Community Health and Social Sciences Graduate School of Public Health and Health Policy City University of New York NY.
Christine D Jones4 Division of Hospital Medicine University of Colorado Denver CO.
Laura Robbins5 Hospital for Special Surgery New York NY.
Yanira Escamilla6 1199SEIU - Home Care Industry Education Fund New York NY.
Ann Lee6 1199SEIU - Home Care Industry Education Fund New York NY.
Faith Wiggins6 1199SEIU - Home Care Industry Education Fund New York NY.
Frances Sadler6 1199SEIU - Home Care Industry Education Fund New York NY.
Martin F Shapiro1 Division of General Internal Medicine Department of Medicine Weill Cornell Medicine New York NY.
Mary E Charlson7 Division of Clinical Epidemiology and Evaluative Science Research Department of Medicine Weill Cornell Medicine New York NY.
Lisa M Kern1 Division of General Internal Medicine Department of Medicine Weill Cornell Medicine New York NY.
Monika M Safford1 Division of General Internal Medicine Department of Medicine Weill Cornell Medicine New York NY.
Cornell University · USCity University of New York · USHospital for Special Surgery · USUniversity of Colorado Hospital · US

Funding

Disparities in COVID Disease Severity and Outcomes in New York CityUL1TR002384 · NCATS · WEILL MEDICAL COLL OF CORNELL UNIV · PI JULIANNE L IMPERATO-MCGINLEY · 2017 to 2026
$86.2M
Improving Care Coordination Between Clinicians to Optimize Care Transitions to Home Health CareK08HS024569 · AHRQ · UNIVERSITY OF COLORADO DENVER · PI JONES, CHRISTINE D · 2016 to 2020
$733k
Complementary and Integrative Medicine Training ProgramT32AT001161 · NCCIH · WEILL MEDICAL COLL OF CORNELL UNIV · PI CHARLSON, MARY E · 2004 to 2008
$721k
AHRQ HHS K08 HS024569NCATS NIH HHS UL1 TR002384NCCIH NIH HHS T32 AT001161
6 · The paper itself

Abstract

Background Home care workers ( HCW s) increasingly provide long-term and posthospitalization care for community-dwelling adults with heart failure ( HF ). They observe, assist, and advise these patients, yet few studies have examined their role in HF . As the foundation for future interventions, we sought to understand the perspectives of HCW s caring for adults with HF . Methods and Results We conducted 8 focus groups in partnership with the Home Care Industry Education Fund, a benefit fund of the 1199 Service Employees International Union United Healthcare Workers East, the largest healthcare union in the United States. English- and Spanish-speaking HCW s with HF clients were eligible to participate. Data were analyzed thematically. Forty-six HCW s employed by 21 unique home care agencies participated. General and HF -specific themes emerged. Generally, HCW s (1) feel overworked and undervalued; (2) find communication and care to be fragmented; (3) are dedicated to clients and families but are caught in the middle; and, despite this, (4) love their job. With respect to HF , HCW s (1) find it frightening and unpredictable; (2) are involved in HF self-care without any HF training; and (3) find the care plan problematic. Conclusions Although frequently involved in HF self-care, most HCW s have not received HF training. In addition, many felt poorly supported by other healthcare providers and the care plan, especially when their clients' symptoms worsened. Interventions that provide HF -specific training and aim to improve communication between members of the home health care team may enhance HCW s' ability to care for adults with HF and potentially lead to better patient outcomes.

Indexed as

FemaleFocus GroupsHeart FailureHome Care AgenciesHome Health AidesHumansMaleMiddle AgedNew York Citycommunity‐partnered researchheart failurehome care workershome health carequalitative research

Identifiers

PMID30571599
PMCPMC6405555
OpenAlexW2902237307

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.