SynthesisJournal of autism and developmental disorders2019
Systematic Review of the Relationship Between Autism Stigma and Informal Caregiver Mental Health.
Synthesis in Journal of autism and developmental disorders, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 50 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
50 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- A Review of the Literature on the Multiple Forms of Stigmatization of Caregivers of Children with Autism Among Ethnic Minority Groups.Journal of racial and ethnic health disparities · 2024Pooled it
- A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe.Autism research : official journal of the International Society for Autism Research · 2020Pooled it
- Impact of a Psychoeducation on Caregiver Burden, Internalized Stigma, Anxiety, and Coping in Caregivers of Children With Epilepsy: A Randomized Pilot Study.Nursing & health sciences · 2025Trial
- SOLACE: A Psychosocial Stigma Protection Intervention to Improve the Mental Health of Parents of Autistic Children-A Feasibility Randomised Controlled Trial.Journal of autism and developmental disorders · 2020Trial
- Parenting Stress, Anxiety, and Depressive Symptoms in Chinese Mothers of Children With ASD: Distinct Moderating Roles of Positive Self-Compassion and Self-Coldness.Journal of autism and developmental disorders · 2026Article
- Adapting compassionate mind training into guided self-help for parents of autistic children.Psychology and psychotherapy · 2026Article
- How Do Social Support and Resilience Interact in Parents of Children with ASD? A Cross-Lagged Mediation and Moderation Analysis from the COR Perspective.Journal of autism and developmental disorders · 2026Article
- The Links Between Parents' Self-Stigma, Parental Burnout, Parental Competence, and Socio-Emotional Adjustment Among Parents of Children With Autism Spectrum Disorder.Journal of autism and developmental disorders · 2026Article
- Experiences and challenges of caregivers of children with cerebral palsy in Magba subdivision, Cameroon: a qualitative analysis.BMC neurology · 2026Article
- Autism Information Progression and the Impact of Misinformation on Autism Knowledge, Awareness and Stigmatization.Behavioral sciences (Basel, Switzerland) · 2026Article
- Does genetic testing impact stigma in autism: A scoping review.Journal of community genetics · 2026Review
- Quality of life outcomes associated with stigma in autistic adults and their families: a systematic review.Frontiers in psychiatry · 2026Review
- Between neuroaffirmation and access: Parents' experiences of autism caregiving in England.PloS one · 2026Article
- Mental Health Status of Caregivers of Children with ASD in Mainland China: The Impact of Stigma and Social Support in the Post-COVID-19 Era.Journal of autism and developmental disorders · 2025Article
- Factors Influencing Despair, Self-blame, and Acceptance Among Parents of Children with Autism Spectrum Disorder (ASD): A Malaysian Perspective.Journal of autism and developmental disorders · 2025Article
- Factors underlying differences in knowledge, explicit stigma and implicit biases towards autism across Hong Kong, the United Kingdom and the United States.Autism : the international journal of research and practice · 2025Article
- Caregiving for autistic children in Nigeria: experiences and challenges.Discover mental health · 2025Article
- Internalized stigma and caregiver burden among caregivers of adolescents with non-suicidal self-injury: a moderated mediation analysis.Frontiers in psychiatry · 2025Article
- Caregiver-centred empowerment for families raising autistic children: A qualitative case study from Argentina.Autism : the international journal of research and practice · 2024Article
- The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children.Journal of autism and developmental disorders · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
Families play a crucial role in determining the mental health of the autistic individual(s) they are caring for. However, the stigma associated with autism can impair caregiver health. To investigate this, empirical evidence pertaining to stigma's impact on informal caregivers' mental health was systematically reviewed. All twelve included studies (n = 1442 informal caregivers) consistently reported the impact of autism related stigma upon caregiver mental health to be significant, meaningful and complex. A new theoretical framework describing the relationship between stigma and caregiver mental health is constructed. Moderating variables include those both changeable through intervention (e.g. hopelessness, self-esteem, self-compassion) and not changeable (gender, culture, financial burden and time since diagnosis). Implications and recommendations for professionals, interventions and future research are proposed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.