Evidence map›Paper›PMID 30565151›Full record

ReviewJournal of general internal medicine2019

Practical Guidance for Involving Stakeholders in Health Research.

Thomas W Concannon, Sean Grant, Vivian Welch, Jennifer Petkovic, Joseph Selby, Sally Crowe, Anneliese Synnot, Regina Greer-Smith, Evan Mayo-Wilson, Ellen Tambor and 2 more

Abstract readReview
In one paragraph

Review in Journal of general internal medicine, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 117 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
117citing papers in PubMed, 4 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

117 citing papers in PubMed, 4 syntheses or guidelines pooled it.

  1. Cost per Opioid-Free Year: A Systematic Review and Summary Analysis.Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research · 2025
    Pooled it
  2. Pooled it
  3. Guideline
  4. Pooled it
  5. Article
  6. Developing a medical-device formulary for council of health insurance beneficiaries in Saudi Arabia: stakeholder challenges and policy recommendations.Saudi pharmaceutical journal : SPJ : the official publication of the Saudi Pharmaceutical Society · 2026
    Article
  7. Article
  8. Article
  9. Review
  10. Review
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Article
  17. Citizen science in osteoarthritis research: a scoping review.Journal of orthopaedic surgery and research · 2025
    Article
  18. Article
  19. Article
  20. Review

57 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Thomas W ConcannonThe RAND Corporation, Boston, MA, USA. tconcann@rand.org.
Sean GrantThe RAND Corporation, Santa Monica, CA, USA.
Vivian WelchUniversity of Ottawa Centre for Global Health, Ottawa, ON, Canada.
Jennifer PetkovicUniversity of Ottawa Centre for Global Health, Ottawa, ON, Canada.
Joseph SelbyPatient Centered Outcomes Research Institute, Washington, DC, USA.
Sally CroweCrowe Associates Ltd, Oxford, UK.
Anneliese SynnotSchool of Psychology and Public Health, La Trobe University, Melbourne, Australia.
Regina Greer-SmithHealthcare Research Associates LLC, Chicago, IL, USA.
Evan Mayo-WilsonJohns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
Ellen TamborCenter for Medical Technology Policy, Baltimore, MD, USA.
Peter TugwellDepartment of Medicine and School of Epidemiology and Public Health, University of Ottawa, Ottawa Hospital Research Institute, Bruyere Research Institute, Ottawa, ON, Canada.
Multi Stakeholder Engagement (MuSE) Consortium

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Stakeholder engagement is increasingly common in health research, with protocols for engaging multiple stakeholder groups becoming normative in patient-centered outcomes research. Previous work has focused on identifying relevant stakeholder groups with whom to work and on working with stakeholders in evidence implementation. This paper draws on the expertise of a team from four countries-Canada, Australia, the UK, and the USA-to provide researchers with practical guidance for carrying out multi-stakeholder-engaged projects: we present a list of questions to assist in selecting appropriate roles and modes of engagement; we introduce a matrix to help summarize engagement activities; and we provide a list of online resources. This guidance, matrix, and list of resources can assist researchers to consider more systematically which stakeholder groups to involve, in what study roles, and by what modes of engagement. By documenting how stakeholders are paired up with specific roles, the matrix also provides a potential structure for evaluating the impact of stakeholder engagement.

Indexed as

Patient Outcome AssessmentStakeholder ParticipationAustraliaBiomedical ResearchCanadaGuidelines as TopicHumansUnited KingdomUnited Statesinternational healthpatient-centered outcomes researchpatient engagementresearch designstakeholder engagement

Identifiers

PMID30565151
PMCPMC6420667

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.