ArticleResearch involvement and engagement2018
Using qualitative Health Research methods to improve patient and public involvement and engagement in research.
Article in Research involvement and engagement, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 65 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
65 citing papers in PubMed, 2 syntheses or guidelines pooled it, 132 citations in OpenAlex.
- Meaningful patient and public involvement in digital health innovation, implementation and evaluation: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- The research burden of randomized controlled trial participation: a systematic thematic synthesis of qualitative evidence.BMC medicine · 2020Pooled it
- A report on parent involvement in planning a randomised controlled trial in neonatology and lactation - insights for current and future research.International breastfeeding journal · 2022Trial
- "We don't get asked": including people with workforce experience as public contributors in a workforce-related study about homecare work towards the end-of-life.Research involvement and engagement · 2026Article
- Cancer early detection research priorities in some underrepresented communities: a commentary of the learnings from a community priority setting project.Research involvement and engagement · 2026Article
- Evolution of Patient and Public Involvement and Engagement in Health-Related Research: A Concept Analysis.Journal of advanced nursing · 2026Review
- Factors supporting research capacity development in an English local authority: a qualitative description and comparison with proposed mechanisms.Health research policy and systems · 2026Article
- Pediatric Hospital Care Research Priorities Within a Regional Whole-of-Life Health Service: Established Through Consumer and Healthcare Professional Collaboration.International journal of pediatrics · 2026Article
- Patient engagement and shared decision-making in trial recruitment intervention studies: a systematic review.Research involvement and engagement · 2025Review
- How equitable is the conduct of public health research? Findings across case studies from India and Australia.International journal for equity in health · 2025Article
- Experience-based co-design of an active case finding service for colorectal cancer in community pharmacies: findings from a focused ethnography.Research involvement and engagement · 2025Article
- Health researchers' experience collaborating with patient partners: a qualitative study.Research involvement and engagement · 2025Article
- Patient's Perception of Primary Health Care Provision With Respect to Access, Continuity and Coordination-InCept: An International Qualitative Perspective.The International journal of health planning and management · 2025Article
- Expanding the pragmatic lens in implementation science: why stakeholder perspectives matter.Implementation science communications · 2025Article
- Developing theoretically grounded strategies to enable and promote patient and public involvement in implementation research studies.Research involvement and engagement · 2025Article
- Translation of Cultures and Texts: Envisioning a Culturally Responsive Translational Practice in Qualitative Research.Qualitative health research · 2025Article
- Safety Culture Through Patient Voice: Qualitative Validation of the Patients' Perceptions of Safety Culture Scale (PaPSC) in Cardiology and Cardiothoracic Surgery.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Enhancing patients' role in scientific writing: insights from a global participatory approach with people with multiple sclerosis.Research involvement and engagement · 2025Article
- "I Got My Trophy": The Story of Implementing a Neuro-Oncology Exercise Program from the Patient and Caregiver Lens-A Qualitative Study.Current oncology (Toronto, Ont.) · 2025Article
- Putting the WHO Global Patient Safety Action Plan into Practice: Establishing the Austrian Patient Council as a Best Practice Example of Patient Involvement.Journal of patient experience · 2025Article
5 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
plain english summaryPatient engagement (or patient and public involvement) in health research is becoming a requirement for many health research funders, yet many researchers have little or no experience in engaging patients as partners as opposed to research subjects. Additionally, many patients have no experience providing input on the research design or acting as a decision-making partner on a research team. Several potential risks exist when patient engagement is done poorly, despite best intentions. Some of these risks are that: (1) patients' involvement is merely tokenism (patients are involved but their suggestions have little influence on how research is conducted); (2) engaged patients do not represent the diversity of people affected by the research; and, (3) research outcomes lack relevance to patients' lives and experiences.Qualitative health research (the collection and systematic analysis of non-quantitative data about peoples' experiences of health or illness and the healthcare system) offers several approaches that can help to mitigate these risks. Several qualitative health research methods, when done well, can help research teams to: (1) accurately incorporate patients' perspectives and experiences into the design and conduct of research; (2) engage diverse patient perspectives; and, (3) treat patients as equal and ongoing partners on the research team.This commentary presents several established qualitative health research methods that are relevant to patient engagement in research. The hope is that this paper will inspire readers to seek more information about qualitative health research, and consider how its established methods may help improve the quality and ethical conduct of patient engagement for health research. ABSTRACT:
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.