ArticleCancer2019
Acquisition of sexual orientation and gender identity data among NCI Community Oncology Research Program practice groups.
Article in Cancer, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
34 citing papers in PubMed, 47 citations in OpenAlex.
- "Just for pregnant women, not for you": a qualitative evaluation of the sexual and reproductive healthcare experiences of transgender and gender diverse cancer survivors.Journal of cancer survivorship : research and practice · 2026Article
- Implementing a stakeholder-informed approach for standardized collection of sexual orientation and gender identity data: lessons learned at a matrix comprehensive cancer center.Journal of the National Cancer Institute. Monographs · 2025Article
- Perspectives on sexual orientation and gender identity data collection from healthcare system staff and leadership: case study in an academic hospital setting.Journal of the National Cancer Institute. Monographs · 2025Article
- Targeted intervention and monitoring of sex assigned at birth, sexual orientation, and gender identity data scale-up: the intersection of research, policy, and patient care.Journal of the National Cancer Institute. Monographs · 2025Article
- A Multistakeholder Qualitative Study to Inform Sexual Orientation and Gender Identity Data Collection in the Cancer Care Setting.LGBT health · 2025Article
- Breadth and Depth of Patient and Caregiver Supportive Services in Community Oncology (WF-1803CD).Psycho-oncology · 2024Article
- Can Open Science Advance Health Justice? Genomic Research Dissemination in the Evolving Data-Sharing Landscape.The Hastings Center report · 2024Article
- Building a Cancer Care Clinic for Transgender and Gender Diverse Individuals.Mayo Clinic proceedings. Innovations, quality & outcomes · 2024Article
- Sexual Orientation and Gender Identity Data Collection in Cancer Care: A Nationwide Landscape Assessment Update.JCO oncology practice · 2024Article
- State LGBTQ policy environments and the cancer burden in sexual and gender minoritized communities in the United States.Cancer medicine · 2024Article
- Article
- Breast cancer and gender-affirming hormone therapy for transgender and gender-diverse (TGD) individuals.Maturitas · 2024Review
- Sexual and Gender Minority Invisibility in Cancer Studies: A Call for Effective Recruitment Methods to Address Cancer Disparities.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2023Article
- State of Cancer Care in America: Achieving Cancer Health Equity Among Sexual and Gender Minority Communities.JCO oncology practice · 2023Article
- Barriers, facilitators, and recommendations for sexual orientation and gender identity data collection in community oncology practices.Cancer medicine · 2023Article
- Approaching sexuality in LGBTQIAP + patients with cancer: scoping review.BMC public health · 2023Article
- Breast Cancer Diagnosis, Treatment, and Outcomes of Patients From Sex and Gender Minority Groups.JAMA oncology · 2023Article
- Access to urologists for participation in research: An analysis of NCI's Community Oncology Research Program landscape survey.Contemporary clinical trials communications · 2022Article
- Sexual Orientation and Gender Identity Data Collection in Oncology Practice: Findings of an ASCO Survey.JCO oncology practice · 2022Article
- Cross-sectional study of psychosocial well-being among lesbian, gay, bisexual, and heterosexual gynecologic cancer survivors.Cancer reports (Hoboken, N.J.) · 2022Article
Corrections and comments
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Authors and funding
11 authors at 8 institutions in 1 country.
Funding
Abstract
backgroundSexual and gender minority individuals face numerous cancer-related inequities, many of which appear to be underreported. However, to the best of the authors' knowledge, no one has assessed rates of acquisition of sexual orientation and gender identity (SOGI) data within community oncology settings.
methodsCommunity oncology practices that were part of the NCI Community Oncology Research Program (NCORP) network were asked whether they routinely collected SOGI information and coded this information in their electronic medical records. The proportion of practice groups reporting routine collection of sexual and/or gender minority information was calculated. Potential associations between the collection of SOGI information and practice group-level and state-level characteristics (from Gallup poll data) were also provided.
resultsTwenty-four percent of the responding NCORP practice groups reported routine collection of sexual orientation information, and 10% reported collection of gender identity information. Practices located in western regions of the United States, practices in states with higher proportions of sexual and gender minority-identifying individuals, and practices with lower proportions of non-Hispanic patients were more likely to ask patients about sexual orientation and/or gender identity.
conclusionsUS oncology practices that participate in research do not frequently collect SOGI information from patients with cancer. Educational initiatives should inform oncology staff and providers about the importance of collecting gender identity and sexual orientation information to improve existent disparities faced by sexual and gender minority patients.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.