SynthesisJournal of pediatric psychology2019
A Systematic Review of Behavioral Intervention Technologies for Youth With Chronic Health Conditions and Physical and Intellectual Disabilities: Implications for Adolescents and Young Adults With Spina Bifida.
Synthesis in Journal of pediatric psychology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed, 26 citations in OpenAlex.
- Commentary: we don't know what we don't know: co-design and implementation science to advance digital psychological interventions.Journal of pediatric psychology · 2026Article
- The transition from pediatric to adult healthcare in spina bifida: an interview-based measure.Journal of pediatric psychology · 2026Article
- Family factors as moderators of the association between specific cognitive domains and psychosocial, academic, and adaptive functioning outcomes in youth with spina bifida.Journal of pediatric psychology · 2025Article
- Inclusive measure development: amplifying the voices of adolescents and young adults with spina bifida in a new measure of benefit-finding and growth.Journal of pediatric psychology · 2024Article
- Caregiver Expressed Emotion in Families of Youth With Spina Bifida: Demographic, Medical, and Family Correlates.Journal of pediatric psychology · 2023Article
- Ethical considerations for developing pediatric mhealth interventions for teens with socially complex needs.Journal of child and adolescent psychiatric nursing : official publication of the Association of Child and Adolescent Psychiatric Nurses, Inc · 2023Review
- Trajectories of Marital Satisfaction among Parents of Youth with Spina Bifida.Journal of pediatric psychology · 2022Article
- Benefit-finding among young adults with spina bifida.Journal of health psychology · 2022Article
- Engaging Parents and Health Care Stakeholders to Inform Development of a Behavioral Intervention Technology to Promote Pediatric Behavioral Health: Mixed Methods Study.JMIR pediatrics and parenting · 2021Article
- Neurocognitive predictors of adaptive functioning trajectories among youth with spina bifida.Child neuropsychology : a journal on normal and abnormal development in childhood and adolescence · 2021Article
- Social Skills and Medical Responsibility Across Development in Youth With Spina Bifida.Journal of pediatric psychology · 2021Article
- Stress and Coping in Youth With Spina Bifida: A Brief Longitudinal Study in a Summer Camp Setting.Frontiers in psychology · 2021Article
- Health behaviors and disordered eating in adolescents and young adults with spina bifida: results from a national survey.Disability and rehabilitation · 2020Article
- Pathways by which Maternal Factors are Associated With Youth Spina Bifida-Related Responsibility.Journal of pediatric psychology · 2020Article
- Development of an Observational Parental Scaffolding Measure for Youth with Spina Bifida.Journal of pediatric psychology · 2020Observational
- Exploring an Existing Weight Management App for Use With Adolescents and Young Adults With Spina Bifida: Usability Study.JMIR pediatrics and parenting · 2019Article
- Introduction to the Coordinated Special Issue on eHealth/mHealth in Pediatric Psychology.Journal of pediatric psychology · 2019Article
- Review
- Mental health guidelines for the care of people with spina bifida.Journal of pediatric rehabilitation medicineReview
- Evaluating behavioral intervention technologies: Integrating human-centered design and implementation science outcomes.Digital healthArticle
Corrections and comments
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Authors and funding
10 authors at 2 institutions in 1 country.
Funding
Abstract
objectiveBehavioral intervention technologies (BITs) stand as a promising delivery mechanism that overcomes multiple condition-specific and access barriers for self-management interventions for adolescents and young adults with spina bifida (AYA-SB). The purpose of the current review was to synthesize the behavioral and self-management intervention literature in conditions that have overlapping symptoms with youth with SB and to develop a model of likely user needs for AYA-SB that promotes self-management.
methodThe search strategy was conducted by a medical research librarian in the following databases: MEDLINE (Ovid), EMBASE (Elsevier), PsycINFO (EbscoHost), the Cochrane Library (Wiley), and Web of Science (Thomson Reuters) databases. The review was based on a systematic narrative synthesis framework and adhered to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines (registration number CRD42018092342).
resultsIn total, 18 articles were included in the current BIT review. The majority of included studies (1) targeted the management of chronic health conditions, (2) were informed by evidence-based approaches, (3) relied on content delivery, (4) were Web-based, (5) used linear or user-driven workflows, (6) included professional human support, and (7) included a control condition.
conclusionsMany of the evaluated BITs resulted in acceptable usage and maintained or improved targeted symptoms. A user needs model for AYA-SB is proposed with the intention that future research will promote further refinement and ultimate deployment of a BIT for AYA-SB to promote self-management.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.