Evidence map›Paper›PMID 30542663›Full record

ArticleWellcome open research2018

Strengthening ethical community engagement in contemporary Malawi.

Deborah Nyirenda, Kate Gooding, Rodrick Sambakunsi, Linley Seyama, Joseph Mfutso-Bengo, Lucinda Manda Taylor, Stephen B Gordon, Michael Parker

Abstract read
In one paragraph

Article in Wellcome open research, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Deborah NyirendaMalawi Liverpool Wellcome Trust Clinical Research Programme, Blantyre, Malawi.ORCID https://orcid.org/0000-0002-5867-4687
Kate GoodingMalawi Liverpool Wellcome Trust Clinical Research Programme, Blantyre, Malawi.ORCID https://orcid.org/0000-0003-4926-0287
Rodrick SambakunsiMalawi Liverpool Wellcome Trust Clinical Research Programme, Blantyre, Malawi.
Linley SeyamaJohns Hopkins Project, Blantyre, Malawi.ORCID https://orcid.org/0000-0002-8682-5833
Joseph Mfutso-BengoUniversity of Malawi College of Medicine, Blantyre, Malawi.
Lucinda Manda TaylorUniversity of Malawi College of Medicine, Blantyre, Malawi.ORCID https://orcid.org/0000-0001-8149-0897
Stephen B GordonMalawi Liverpool Wellcome Trust Clinical Research Programme, Blantyre, Malawi.
Michael ParkerThe Ethox Centre/ Wellcome Centre for Ethics and Humanities, University of Oxford, Oxford, UK.ORCID https://orcid.org/0000-0002-7054-4711

Funding

Wellcome Trust
6 · The paper itself

Abstract

Although community engagement is increasingly promoted in global health research to improve ethical research practice, there is sometimes a disconnect between the broader moral ambitions for community engagement in the literature and guidelines on the one hand and its rather narrower practical application in health research on the other. In practice, less attention is paid to engaging communities for the 'intrinsic' value of showing respect and ensuring inclusive participation of community partners in research design. Rather, more attention is paid to the use of community engagement for 'instrumental' purposes to improve community understanding of research and ensure successful study implementation. Against this backdrop, we reviewed the literature and engaged various research stakeholders at a workshop to discuss ways of strengthening ethical engagement of communities and to develop context-relevant guidelines for community engagement in health research in Malawi.

Indexed as

Community engagementhealth researchMalawiresearch ethics

Identifiers

PMID30542663
PMCPMC6259484

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.