ArticleHealth research policy and systems2018
Mental health research priorities in Australia: a consumer and carer agenda.
Article in Health research policy and systems, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Methodological procedures for priority setting mental health research: a systematic review summarising the methods, designs and frameworks involved with priority setting.Health research policy and systems · 2023Pooled it
- It's Not Really the Words; It's How They Land: Lived Experience Perspectives on the Use of Language and Labels in Mental Health.International journal of environmental research and public health · 2026Article
- Is the Prejudice Towards People With Borderline Personality Disorder Model Reflective of Lived Experience?International journal of mental health nursing · 2026Article
- Scoping Review of Co-Design in Mental Health Research: Essential Elements and Recommendations.OTJR : occupation, participation and health · 2026Article
- An Exploratory Study of Research Needed for the Improvement of Care and Services for Persons with a Lived Experience of Mental Health Challenges.International journal of environmental research and public health · 2026Article
- Healthy Smiles: Promoting Good Oral Health for Youth With Serious Mental Illness.Community dentistry and oral epidemiology · 2025Article
- The Coproduced Youth Priorities Project: Australian Youth Priorities for Mental Health and Substance Use Prevention Research.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- 'Wisdom Is Knowledge Plus Experience': Qualitative Study of Lived Experience and Researcher Perspectives on Suicide Research Co-Production.International journal of mental health nursing · 2025Article
- What are the priorities of consumers and carers regarding measurement for evaluation in mental healthcare? Results from a Q-methodology study.Health research policy and systems · 2024Article
- 'Keeping it real': A qualitative exploration of preferences of people with lived experience for participation and active involvement in mental health research in Australia.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Experience is central and connections matter: A Leximancer analysis of the research priorities of people with lived experience of mental health issues in Australia.PLOS mental health · 2024Article
- Stakeholder identified research priorities for early intervention in psychosis.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Keeping the Agenda Current: Evolution of Australian Lived Experience Mental Health Research Priorities.International journal of environmental research and public health · 2022Article
- Applying systems approaches to stakeholder and community engagement and knowledge mobilisation in youth mental health system modelling.International journal of mental health systems · 2022Article
- Mental Health Peer Worker Perspectives on Resources Developed from Lived Experience Research Findings: A Delphi Study.International journal of environmental research and public health · 2022Article
- A clinical research priority setting study for issues related to the use of methamphetamine and emerging drugs of concern in Australia.Drug and alcohol review · 2022Article
- Virtual World Café Method for Identifying Mental Health Research Priorities: Methodological Case Study.International journal of environmental research and public health · 2021Article
- Research priorities set by people with OCD and OCD researchers: Do the commonalities outweigh the differences?Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Consumer-Guided Development of an Engagement-Facilitation Intervention for Increasing Uptake and Adherence for Self-Guided Web-Based Mental Health Programs: Focus Groups and Online Evaluation Survey.JMIR formative research · 2020Article
- Contextual influences on the impact of a peer worker-led self-stigma program for people with mental health issues: protocol for an interventional implementation science study.Implementation science communications · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
backgroundThe perspectives of mental health consumers and carers are increasingly recognised as important to the development and conduct of research. However, research directions are still most commonly developed without consumer and carer input. This project aimed to establish priorities for mental health research driven by the views of consumers and carers in Australia.
methodThe project was conducted in two studies. Firstly, a face-to-face discussion forum held in the Australian Capital Territory (Study 1; n = 25), followed by a national online survey (Study 2; n = 70). Participants in both studies were members of the community who identified as a mental health consumer, carer or both. In Study 1, participants developed topics for mental health research in small group discussions, then voted on which topics, developed across all groups and sorted into thematic areas, were a priority. An online survey was developed from these research topics. Study 2 participants were asked to rate topics on a 5-point priority scale and rank the relative importance of the highest-rated topics.
resultsAt the forum, 79 topics were generated and grouped into 14 thematic areas. Votes on priorities were spread across a large number of topics, with the greatest overall support for research relating to integrating care that is sensitive to past experiences of trauma into mental health service delivery (trauma-informed care). Survey responses were similarly spread, with the majority of research topics rated as important by at least 50% of participants and no clear individual priorities for research identified. Amongst items rated as important by approximately 80% of participants, key research areas included the delivery of services, and consumer and carer involvement.
conclusionsAustralian mental health consumers and carers demonstrate a strong understanding of the mental health system and its inadequacies. Although clear specific priorities are difficult to establish, consistent areas of focus are services and the role consumers and carers can play in their improvement. However, for consumer and carer views to be at the forefront of research, it is important to regularly update research agendas and work in partnership across the whole research process.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.