Evidence map›Paper›PMID 30535901›Full record

ArticleJournal of cancer survivorship : research and practice2019

Integrating self-management into daily life following primary treatment: head and neck cancer survivors' perspectives.

Simon Dunne, Laura Coffey, Linda Sharp, Deirdre Desmond, Rachael Gooberman-Hill, Eleanor O'Sullivan, Aileen Timmons, Ivan Keogh, Conrad Timon, Pamela Gallagher

Abstract read
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In one paragraph

Article in Journal of cancer survivorship : research and practice, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
22citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

22 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
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  10. 'Eating with Others': planning, developing and optimising a self-management intervention to promote social eating for patients living with and beyond head and neck cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
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  19. Breast cancer-related lymphedema patient and healthcare professional experiences in lymphedema self-management: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021
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  20. Post-treatment head and neck cancer survivors' approaches to self-management: A qualitative study.European journal of oncology nursing : the official journal of European Oncology Nursing Society · 2021
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Simon DunneSchool of Nursing and Human Sciences, Dublin City University, Dublin, Ireland.ORCID 0000-0003-3655-7647
Laura CoffeyDepartment of Psychology, Maynooth University, Co. Kildare, Ireland.
Linda SharpInstitute of Health and Society, Newcastle University, Newcastle, UK.
Deirdre DesmondDepartment of Psychology, Maynooth University, Co. Kildare, Ireland.
Rachael Gooberman-HillSchool of Clinical Sciences, University of Bristol, Bristol, UK.
Eleanor O'SullivanUniversity College Cork Dental School and Hospital, Cork, Ireland.
Aileen TimmonsNational Cancer Registry Ireland, Cork, Ireland.
Ivan KeoghAcademic Department of Oto Rhino Laryngology, National University of Ireland Galway, Galway, Ireland.
Conrad TimonHead and Neck Cancer Programme, St. James's Hospital, Dublin, Ireland.
Pamela GallagherSchool of Nursing and Human Sciences, Dublin City University, Dublin, Ireland. pamela.gallagher@dcu.ie.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundSelf-management may help cancer survivors to better deal with challenges to their physical, functional, social and psychological well-being presented by cancer and its treatment. Nonetheless, little is known about how people integrate cancer self-management practices into their daily lives. The aim of this study was to describe and characterise the processes through which head and neck cancer (HNC) survivors attempt to integrate self-management into their daily lives following primary treatment.

methodsUsing a purposeful critical case sampling method, 27 HNC survivors were identified through four designated cancer centres in Ireland and participated in face-to-face semi-structured interviews. Interviews were audio-recorded, transcribed and analysed using thematic analysis.

resultsSix themes describing HNC survivors' attempts to integrate self-management into their lives following treatment were identified: grappling with having to self-manage, trying out self-management strategies, becoming an expert self-manager, struggling to integrate self-management strategies into daily life, avoiding recommended self-management and interpreting self-management.

conclusionsThis is the first study to describe HNC survivors' attempts to integrate self-management into their daily lives following primary treatment. The findings indicate that HNC survivors exhibit highly individualised approaches to self-management integration and abandon self-management strategies that fail to meet their own specific needs. IMPLICATIONS FOR CANCER SURVIVORS: Survivors may benefit from skills training and structured support to assist their transition between in-patient care and having to self-manage after primary treatment, and/or ongoing support to deal with persistent and recurring challenges such as eating difficulties and fear of recurrence.

Indexed as

Activities of Daily LivingCancer SurvivorsAdultAgedAged, 80 and overFearFemaleHead and Neck NeoplasmsHumansIrelandMaleMiddle AgedNeoplasm Recurrence, LocalPsycho-OncologyQuality of LifeSelf-ManagementCancer survivorshipHead and neck cancerPsycho-oncologyQualitativeSelf-management

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.