ArticleMedical care2019
Symptom Care at Home: A Comprehensive and Pragmatic PRO System Approach to Improve Cancer Symptom Care.
Article in Medical care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
25 citing papers in PubMed.
- Essential Components of an Electronic Patient-Reported Symptom Monitoring and Management System: A Randomized Clinical Trial.JAMA network open · 2024Trial
- A Remote Symptom Monitoring Tool As Part of Ambulatory Cancer Surgery Recovery: A Qualitative Analysis of Patient Experience.JCO oncology practice · 2023Trial
- September 2026 Letter to the Editor.Oncology nursing forum · 2026Article
- Revolutionizing spine surgery with emerging AI-FEA integration.Journal of robotic surgery · 2025Review
- Systematic review on the technology's role in supporting lung cancer patients in the treatment journey.NPJ digital medicine · 2025Article
- Digital Patient-Reported Cancer Symptom Management: Comparison of Black and White Participants.Cancer medicine · 2025Article
- Convalescence after radical orchiectomy: Detailing surgical recovery with a novel electronic patient reported outcome (ePRO) platform.Urologic oncology · 2025Article
- Observational
- Patient-reported outcomes after CAR T-cell therapy in patients with hematological malignancies.Hematology. American Society of Hematology. Education Program · 2024Review
- A Collection of Components to Design Clinical Dashboards Incorporating Patient-Reported Outcome Measures: Qualitative Study.Journal of medical Internet research · 2024Article
- Preemptive Forecasting of Symptom Escalation in Cancer Patients Undergoing Chemotherapy.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
- Article
- The use of patient-reported outcome measures by healthcare professionals in specialized asthma management centers in French-speaking Belgium: A mixed-methods study.Clinical and translational allergy · 2023Article
- Family Caregiver Reports of Their Own and Patient Symptoms in Cancer Home Hospice Approaching End-of-Life.The American journal of hospice & palliative care · 2023Article
- Digital health as an enabler for hospital@home: A rising trend or just a vision?Frontiers in public health · 2023Review
- Article
- Article
- Challenges and Opportunities in Designing and Deploying Remote Health Monitoring Technology for Older Adults With Cancer.Innovation in aging · 2022Article
- Informal caregiver burden for solid tumour cancer patients: a review and future directions.Psychology & health · 2021Review
- Advancing Oncology Nursing Practice Through the Adoption of Patient Monitoring Digital Tools.Seminars in oncology nursing · 2020Review
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Authors and funding
3 authors.
Funding
Abstract
introductionThere is growing recognition that systematically obtaining the patient's perspective on their health experience, using patient-reported outcomes (PRO), can be used to improve patient care in real time. Few PRO systems are designed to monitor and provide symptom management support between visits. Patients are instructed to contact providers between visits with their concerns, but they rarely do, leaving patients to cope with symptoms alone at home. We developed and tested an automated system, Symptom Care at Home (SCH), to address this gap in tracking and responding to PRO data in-between clinic visits. The purpose of this paper is to describe SCH as an example of a comprehensive PRO system that addresses unmet need for symptom support outside the clinic. METHODS FOR PRO SCORE
interpretationSCH uses pragmatic, single-item measures for assessing symptoms, which are commonly used and readily interpretable for both patients and providers. We established alerting values for PRO symptom data, which was particularly important for conserving oncology providers' time in responding to daily PRO data. METHODS FOR DEVELOPING RECOMMENDATIONS FOR ACTING ON PRO
resultsThe SCH system provides automated, just-in-time self-management coaching tailored to the specific symptom pattern and severity levels reported in the daily call. In addition, the SCH system includes a provider decision support system for follow-up symptom assessment and intervention strategies. DISCUSSION: SCH provides PRO monitoring, tailored automated self-management coaching, and alerts the oncology team of poorly controlled symptoms with a provider dashboard that includes evidence-based decision support for follow-up to improve individual patients' symptom care. We particularly emphasize our process for PRO selection, rationale for determining alerting thresholds, and the design of the provider dashboard and decision support. Currently, we are in the process of updating the SCH system, developing both web-based and app versions in addition to interactive voice response phone access and integrating the SCH system in the electronic health record.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.