ArticleHealth expectations : an international journal of public participation in health care and health policy2019
User involvement in regulation: A qualitative study of service user involvement in Care Quality Commission inspections of health and social care providers in England.
Article in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it.
- What methods are used to promote patient and family involvement in healthcare regulation? A multiple case study across four countries.BMC health services research · 2020Pooled it
- Assessing the use of the input of care users in long-term care homes during 2020-2023 in the Netherlands: an exploratory study.BMJ open quality · 2026Article
- Licensing and regulation of the mental health residential care facilities: A case study from the Sedibeng district, South Africa.PLOS mental health · 2025Article
- Involving Service Users in Care Regulation: A Scoping Review of Empirical Literature.International journal of health policy and management · 2025Article
- Correlations between care users' and the healthcare inspectorate's ratings of the quality of care in long-term care homes.BMJ open quality · 2023Article
- Humanizing harm: Using a restorative approach to heal and learn from adverse events.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- The measurement and improvement of maternity service performance through inspection and rating: An observational study of maternity services in acute hospitals in England.Health policy (Amsterdam, Netherlands) · 2020Observational
- Do performance indicators predict regulator ratings of healthcare providers? Cross-sectional study of acute hospitals in England.International journal for quality in health care : journal of the International Society for Quality in Health Care · 2020Article
- Regulatory inspection of registered private drug shops in East-Central Uganda-what it is versus what it should be: a qualitative study.Journal of pharmaceutical policy and practice · 2020Article
- Using quality indicators to predict inspection ratings: cross-sectional study of general practices in England.The British journal of general practice : the journal of the Royal College of General Practitioners · 2020Article
- User involvement in regulation: A qualitative study of service user involvement in Care Quality Commission inspections of health and social care providers in England.Health expectations : an international journal of public participation in health care and health policy · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
backgroundHigh profile failures of care in the NHS have raised concerns about regulatory systems for health-care professionals and organizations. In response, the Care Quality Commission (CQC), the regulator of health and social care in England overhauled its regulatory regime. It moved to inspections which made much greater use of expert knowledge, data and views from a range of stakeholders, including service users.
objectiveWe explore the role of service users and citizens in health and social care regulation, including how CQC involved people in inspecting and rating health and social care providers.
designWe analyse CQC reports and documents, and 61 interviews with CQC staff and representatives of groups of service users and citizens and voluntary sector organizations to explore the place of service user voice in regulatory processes.
resultsCare Quality Commission invited comments and facilitated the sharing of existing service user experiences and engaged with representatives of groups of service users and voluntary sector organizations. CQC involved service users in their inspections as "experts by experience." Information from service users informed both the inspection regime and individual inspections, but CQC was less focused on giving feedback to service users who contributed to these activities. DISCUSSION AND
conclusionsService users can make an important contribution to regulation by sharing their experiences and having their voices heard, but their involvement was somewhat transactional, and largely on terms set by CQC. There may be scope for CQC to build more enduring relationships with service user groups and to engage them more effectively in the regulatory regime.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.