Evidence map›Paper›PMID 30497302›Full record

ArticleDementia (London, England)2020

The Care Ecosystem: Promoting self-efficacy among dementia family caregivers.

Jennifer J Merrilees, Alissa Bernstein, Sarah Dulaney, Julia Heunis, Reilly Walker, Esther Rah, Jeff Choi, Katherine Gawlas, Savannah Carroll, Paulina Ong and 8 more

3 registry-linked trialsOpen access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Dementia (London, England), 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 3 registered trials, which are not on this map. Cited by 31 papers.

0numbers the graph read from it
0cells of the map it votes in
31citing papers in PubMed
1.5field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04287738 nacompletednot on this map

Care Ecosystem: Navigating Patients and Families Through Stages of Care, Extension Trial

TypeinterventionalSponsorUniversity of California, San FranciscoRan2015 to 2022Enrolled912ConditionsDementia, Alzheimer Disease, Dementia, Vascular, Lewy Body DiseaseArmsNavigated Care
NCT05669365 nacompletednot on this mapstarted 2023, after this paper: background citation

The Care Ecosystem Consortium Effectiveness Study

TypeinterventionalSponsorUniversity of California, San FranciscoRan2023 to 2025Enrolled1,227ConditionsDementia, Dementia, Vascular, Dementia With Lewy Bodies, Dementia AlzheimersArmsCare Ecosystem
NCT06860035 narecruitingnot on this mapstarted 2025, after this paper: background citation

Dementia Caregivers' Link to Assistance and Resources: Supporting Caregivers of Home Health Patients With Dementia

TypeinterventionalSponsorVisiting Nurse Service of New YorkRan2025 to 2026Enrolled200ConditionsAlzheimer Disease or Associated Disorder, DementiaArmsDementia Caregivers' Link to Assistance and Resources (DECLARE)
3 · Its place in the literature

Who cites it

31 citing papers in PubMed, 61 citations in OpenAlex.

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  3. Self-efficacy change among diverse family caregivers in dementia care.The journals of gerontology. Series B, Psychological sciences and social sciences · 2026
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  8. [Low care burden and high self-efficacy are essential for preparing family carers to care for people with dementia-findings from the TeleCareHub project].Neuropsychiatrie : Klinik, Diagnostik, Therapie und Rehabilitation : Organ der Gesellschaft Osterreichischer Nervenarzte und Psychiater · 2026
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  9. Dementia Severity Associated With Unmet Caregiving Needs During Skilled Home Health Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors at 3 institutions in 1 country.

Jennifer J MerrileesDepartment of Neurology, Memory and Aging Center, University of California, San Francisco, CA, USA.ORCID https://orcid.org/0000-0003-0907-0139
Alissa BernsteinPhilip R. Lee Institute for Health Policy Studies; Global Brain Health Institute, University of California, San Francisco, CA, USA.
Sarah DulaneyDepartment of Neurology, Memory and Aging Center, University of California, San Francisco, CA, USA.
Julia HeunisDepartment of Neurology, Memory and Aging Center, University of California, San Francisco, CA, USA.
Reilly WalkerDepartment of Neurology, Memory and Aging Center, University of California, San Francisco, CA, USA.
Esther RahDepartment of Neurology, Memory and Aging Center, University of California, San Francisco, CA, USA.
Jeff ChoiDepartment of Neurology, Memory and Aging Center, University of California, San Francisco, CA, USA.
Katherine GawlasDepartment of Neurology, Memory and Aging Center, University of California, San Francisco, CA, USA.
Savannah CarrollDepartment of Neurology, Memory and Aging Center, University of California, San Francisco, CA, USA.
Paulina OngDepartment of Neurology, Memory and Aging Center, University of California, San Francisco, CA, USA.
Julie FeuerDepartment of Neurology, Memory and Aging Center, University of California, San Francisco, CA, USA.
Tamara BraleyDivision of Geriatrics, Department of Internal Medicine, Home Instead Center for Successful Aging, Omaha, NE, USA.
Amy M ClarkDivision of Geriatrics, Department of Internal Medicine, Home Instead Center for Successful Aging, Omaha, NE, USA.
Kirby LeeDepartment of Clinical Pharmacy, University of California, San Francisco, CA, USA.
Winston ChiongDepartment of Neurology, Memory and Aging Center, University of California, San Francisco, CA, USA.
Stephen J BonaseraDivision of Geriatrics, Department of Internal Medicine, Home Instead Center for Successful Aging, Omaha, NE, USA.
Bruce L MillerDepartment of Neurology, Memory and Aging Center, University of California, San Francisco, CA, USA.
Katherine L PossinDepartment of Neurology, Memory and Aging Center, University of California, San Francisco, CA, USA.
University of California, San Francisco · USQuality Living · USGlobal Brain Health Institute · US

Funding

The Care Ecosystem: Navigating patients and caregivers through stages of dementia careR01AG056715 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI POSSIN, KATHERINE LAUREL · 2017 to 2021
$6.0M
UC Berkeley-UCSF Health Services Research Training ProgramT32HS022241 · AHRQ · UNIVERSITY OF CALIFORNIA BERKELEY · PI RODRIGUEZ, HECTOR P. · 2013 to 2024
$3.2M
Mapping the Dynamics of Caregiver Burden in Alzheimer's DiseaseK01AG059840 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI SIDEMAN, ALISSA BERNSTEIN · 2020 to 2024
$652k
AHRQ HHS T32 HS022241NIA NIH HHS K01 AG059840NIA NIH HHS R01 AG056715
6 · The paper itself

Abstract

objectivesTo illustrate specific psychosocial interventions aimed at improving self-efficacy among family caregivers enrolled in the Care Ecosystem, a model of navigated care designed to support persons with dementia and their primary caregivers. Enrolled family caregivers work with unlicensed care team navigators who are trained in dementia care and provide information, linkages to community resources, and emotional support by phone and email.

methodWe conducted focus groups and interviews with the care team navigators to identify the approaches they used to target caregiver self-efficacy. We assessed mean self-efficacy scores in a sample of 780 family caregivers and selected three exemplary cases in which the caregivers had low self-efficacy scores at baseline with significantly higher scores after six months of participation in the Care Ecosystem intervention.

resultsMultiple psychosocial strategies were utilized by care team navigators working with patients with dementia and their family caregivers. Using thematic coding we identified three categories of Care Team Navigator intervention: emotional, informational, and instrumental support. These are consistent with a psychosocial approach to building self-efficacy. DISCUSSION: Self-efficacy represents a family caregiver's knowledge and preparedness in managing the challenges of care. Psychosocial support shows benefit in improving caregiver self-efficacy that in turn, may positively influence caregiver health and well-being. The findings in this manuscript demonstrate how a model of navigated care can positively impact self-efficacy among dementia family caregivers.

Indexed as

CaregiversSelf EfficacyAgedDementiaFemaleHumansMaleMedicareUnited StatesAlzheimer's diseasecaregiver self-efficacycaregivingcare navigationdementia

Identifiers

PMID30497302
PMCPMC6541533
OpenAlexW2902717305

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.