ArticleJournal of the American Medical Informatics Association : JAMIA2019
Blockchain-based platforms for genomic data sharing: a de-centralized approach in response to the governance problems?
Article in Journal of the American Medical Informatics Association : JAMIA, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- A systematic study on blockchain technology for genomic data management in healthcare: approaches, challenges, and research opportunities.Medical & biological engineering & computing · 2026Pooled it
- Exploring applications of blockchain in healthcare: road map and future directions.Frontiers in public health · 2023Pooled it
- Understanding Genetic Screening: Harnessing Health Information to Prevent Disease Risks.International journal of medical sciences · 2025Review
- Blockchain Applications in Core Healthcare Services: Patient Data, Research, and Institutional Processes.Blockchain in healthcare today · 2025Article
- Blockchain Technology in Digital Health and Medical Technologies.Blockchain in healthcare today · 2025Article
- A framework for sharing of clinical and genetic data for precision medicine applications.Nature medicine · 2024Article
- Blockchain governance and trust: A multi-sector thematic systematic review and exploration of future research directions.Heliyon · 2024Review
- Balancing the safeguarding of privacy and data sharing: perceptions of genomic professionals on patient genomic data ownership in Australia.European journal of human genetics : EJHG · 2024Article
- Achieving Procedural Parity in Managing Access to Genomic and Related Health Data: A Global Survey of Data Access Committee Members.Biopreservation and biobanking · 2024Article
- Non-Fungible Tokens for Organoids: Decentralized Biobanking to Empower Patients in Biospecimen Research.Blockchain in healthcare today · 2024Article
- Role of Incentives in the Use of Blockchain-Based Platforms for Sharing Sensitive Health Data: Experimental Study.Journal of medical Internet research · 2023Article
- Examining public views on decentralised health data sharing.PloS one · 2023Article
- Leveraging Algorithms to Improve Decision-Making Workflows for Genomic Data Access and Management.Biopreservation and biobanking · 2022Article
- A scoping review of distributed ledger technology in genomics: thematic analysis and directions for future research.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Blockchains as a means to promote privacy protecting, access availing, incentive increasing, ELSI lessening DNA databases.Frontiers in digital health · 2022Review
- "Idealists and capitalists": ownership attitudes and preferences in genomic citizen science.New genetics and society · 2022Article
- The multidimensional legal nature of personal genomic sequence data: A South African perspective.Frontiers in genetics · 2022Article
- Using game theory to thwart multistage privacy intrusions when sharing data.Science advances · 2021Article
- A Blockchain-Based Dynamic Consent Architecture to Support Clinical Genomic Data Sharing (ConsentChain): Proof-of-Concept Study.JMIR medical informatics · 2021Article
- Potential Uses of Blockchain Technology for Outcomes Research on Opioids.JMIR medical informatics · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Blockchain-based platforms are emerging to provide solutions for technical and governance challenges associated with genomic data sharing. Providing capabilities for distributed data stewardship and participatory access control along with effective ways for enforcement of the data access agreements and data ownership are among the major promises of these platforms.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.