ArticleThe patient2019
Creation of a Decision Support Tool for Expectant Parents Facing Threatened Periviable Delivery: Application of a User-Centered Design Approach.
Article in The patient, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it, 22 citations in OpenAlex.
- Human-centered design and maternity care: is this a possible interplay?-a systematic review.BMC pregnancy and childbirth · 2025Pooled it
- Who decides? Exploring decisional dynamics for periviable resuscitation among diverse family structures.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- The impact of standardization of care for neonates born at 22-23 weeks gestation.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Development of web- and mobile-based shared decision-making tools in the neurological intensive care unit.Neurotherapeutics : the journal of the American Society for Experimental NeuroTherapeutics · 2025Review
- Feasibility and acceptability of chaplain decision coaching on Periviable resuscitation decision quality: A pilot study.PEC innovation · 2024Article
- Unlocking success: community engagement for enhanced HIV care outcomes.Research involvement and engagement · 2024Article
- Unlocking Success: Community Engagement for Enhanced HIV Care Outcomes.Research square · 2024Article
- "It feels like you have to choose one or the other": a qualitative analysis of obstetrician focus groups on periviability counseling.Journal of perinatal medicine · 2024Article
- Perinatal optimisation for periviable birth and outcomes: a 4-year network analysis (2018-2021) across a change in national guidance.Frontiers in pediatrics · 2024Article
- "Research Jam": Engaging patients and other stakeholders through human-centered design to improve translational research.Journal of clinical and translational science · 2023Article
- Video tools in pediatric goals of care communication: A systematic review.PEC innovation · 2022Review
- The Application of Human-Centered Design Approaches in Health Research and Innovation: A Narrative Review of Current Practices.JMIR mHealth and uHealth · 2021Review
- User-testing of a decision-support tool for parents facing threatened periviable delivery: The Periviable GOALS decision aid.Patient education and counseling · 2021Article
- Development and validation of a self-reported questionnaire to assess occupational balance in parents of preterm infants.PloS one · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 5 institutions in 1 country.
Funding
Abstract
backgroundShared decision-making (SDM) is optimal in the context of periviable delivery, where the decision to pursue life-support measures or palliation is both preference sensitive and value laden. We sought to develop a decision support tool (DST) prototype to facilitate SDM by utilizing a user-centered design research approach.
methodsWe convened four patient and provider advisory boards with women and their partners who had experienced a surviving or non-surviving periviable delivery, pregnant women who had not experienced a prior preterm birth, and obstetric providers. Each 2-h session involved design research activities to generate ideas and facilitate sharing of values, goals, and attitudes. Participant feedback shaped the design of three prototypes (a tablet application, family story videos, and a virtual reality experience) to be tested in a final session.
resultsNinety-five individuals (48 mothers/partners; 47 providers) from two hospitals participated. Most participants agreed that the prototypes should include factual, unbiased outcomes and probabilities. Mothers and support partners also desired comprehensive explanations of delivery and care options, while providers wanted a tool to ease communication, help elicit values, and share patient experiences. Participants ultimately favored the tablet application and suggested that it include family testimonial videos.
conclusionOur results suggest that a DST that combines unbiased information and understandable outcomes with family testimonials would be meaningful for periviable SDM. User-centered design was found to be a useful method for creating a DST prototype that may lead to improved effectiveness, usability, uptake, and dissemination in the future, by leveraging the expertise of a wide range of stakeholders.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.