ArticleEcancermedicalscience2018
What information do cancer patients want and how well are their needs being met?
Article in Ecancermedicalscience, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
28 citing papers in PubMed, 1 synthesis or guideline pooled it, 54 citations in OpenAlex.
- Designing a Pragmatic Intervention to Help Improve the Bladder Cancer Patient Experience.Inquiry : a journal of medical care organization, provision and financingPooled it
- Evaluation of online cancer information for Aboriginal and Torres Strait Islander peoples: a systematic environmental scan.JNCI cancer spectrum · 2026Article
- Information experiences among women diagnosed with endometrial cancer: a mixed methods study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Survivorship care guidance in a diverse cancer survivor population: Cancer Registry for Understanding and Improving Survivorship Experiences (CRUISE) Study.Journal of cancer survivorship : research and practice · 2026Article
- Communication and information needs of patients with cancer in Ghana: A scoping review.PloS one · 2026Article
- Living with brain metastasis - a qualitative study of patients' and family members' coping strategies.International journal of qualitative studies on health and well-being · 2025Article
- 'I knew I had to drive my own bus': perspectives of patients and healthcare professionals on improving information provision to rare cancer survivors.Journal of cancer survivorship : research and practice · 2025Article
- Article
- Gaps in cancer care in a multi-ethnic population in Sarawak, Borneo: A central referral centre study.PloS one · 2024Article
- Predictors of information needs among women with breast cancer receiving adjuvant therapy at Tikur Anbessa specialized hospital, Addis Ababa Ethiopia: a cross-sectional study.BMC women's health · 2023Article
- Lifestyle aspects in a contemporary middle-European cohort of patients undergoing androgen deprivation therapy for advanced prostate cancer: data from the non-interventional LEAN study.The British journal of nutrition · 2023Observational
- Patient Information Resources on Cardiovascular Health After Cancer Treatment: An Audit of Australian Resources.JCO global oncology · 2023Review
- The Functioning of Hospice in the Perception of Family Members of Cancer Surgery and Hospice Patients.International journal of environmental research and public health · 2023Article
- Using Google Trends and Wikipedia to Investigate the Global Public's Interest in the Pancreatic Cancer Diagnosis of a Celebrity.International journal of environmental research and public health · 2023Article
- Article
- Experiences of cancer patients about seeking health information: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- The cancer epidemic in the Caribbean region: Further opportunities to reverse the disease trend.Lancet regional health. Americas · 2022Review
- Preparation for Cancer Treatment: A Cross-Sectional Study Examining Patient Self-Reported Experiences and Correlates.International journal of environmental research and public health · 2022Article
- Integrated, cross-sectoral psycho-oncology (isPO): a new form of care for newly diagnosed cancer patients in Germany.BMC health services research · 2022Article
- Cancer Survivors: What Are Their Information Seeking Behaviours?Journal of cancer education : the official journal of the American Association for Cancer Education · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The goal of this study is to determine the type of information cancer patients need and to measure the extent to which these information needs are met by measuring patients' levels of satisfaction. A self-administered questionnaire developed through extensive literature reviews was pilot tested on 11 cancer patients using convenience sampling in a large ambulatory cancer centre in Singapore. All eligible patients attending the centre during a 5-month period were invited to complete the 76-item survey that had been designed to evaluate self-reported information needs and level of satisfaction with the information received while undergoing cancer treatment. The importance of information and the level of satisfaction with needs being met were assessed with the 5-point Likert scale. A total of 411 patients (50%) completed the survey. Almost all patients wanted information about the disease, tests and investigations, treatment, side-effects, sexuality, psychosocial support and financial matters, and most items listed in the questions in each selection were rated as important or very important. Responses indicate that patients were generally satisfied with the information provided especially on diagnosis and diagnostic tests, treatment and overall experience but there are information needs that need to be addressed more efficiently and effectively. The findings of this study support previous research which indicates that cancer patients who are receiving treatment have many information needs. Respondents were generally satisfied with the information provided, although some discrepancies were noted which reflect the complexities associated with cancer patient education.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.