ArticleJournal of women's health (2002)2019
Understanding Patients' Perspectives and Information Needs Following a Positive Home Human Papillomavirus Self-Sampling Kit Result.
Article in Journal of women's health (2002), 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- What are the views and experiences of human papillomavirus (HPV) self-sampling for cervical screening in high-income countries? A qualitative systematic review using the Theoretical Domains Framework.BMC public health · 2026Pooled it
- Cost-effectiveness studies of HPV self-sampling: A systematic review.Preventive medicine · 2020Pooled it
- Promoting cervical cancer screening via a mailed HPV self-collection kit: Reactions from screeners and non-screeners.Patient education and counseling · 2026Trial
- Trial
- Reactions of women underscreened for cervical cancer who received unsolicited human papillomavirus self-sampling kits.Journal of medical screening · 2020Trial
- The Convenience-anxiety Paradox: Carcinophobia and Screening Misconceptions in Minimally Supported Human Papillomavirus Self-sampling.International journal of behavioral medicine · 2026Article
- Underscreened Women's Reactions to At-Home Self-Collected Human Papillomavirus Test Result Delivery.Sexually transmitted diseases · 2026Article
- Improving Communication and Management Following a Positive Home HPV Self-Sampling Result: Comparing Intervention Strategies Between the HOME and STEP Trials.Women's health reports (New Rochelle, N.Y.) · 2025Article
- Feasibility and applicability of self-sampling based online cervical cancer screening: findings from the China online cervical cancer screening trial.Infectious agents and cancer · 2024Article
- Older women's perceptions of HPV self-sampling and HPV-sampling performed by a midwife - a phenomenographic study.BMC public health · 2024Article
- Confusion and anxiety in between abnormal cervical cancer screening results and colposcopy: "The land of the unknown".Patient education and counseling · 2023Article
- Experiences of human papillomavirus self-sampling by women >60 years old: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- "You are always left with doubts": information access among HPV-positive women in Greater Buenos Aires.Revista de salud publica (Bogota, Colombia) · 2023Article
- Impact of different financial incentive structures on a web-based health survey: do timing and amount matter?Connected health and telemedicine · 2023Article
- Women's acceptability of a self-collect HPV same-day screen-and-treat program in a high burden setting in the Pacific.BMC health services research · 2022Article
- Design of a pragmatic randomized controlled trial of home-based human papillomavirus (HPV) self-sampling for increasing cervical cancer screening uptake in a U.S. healthcare system: The STEP trial.Contemporary clinical trials · 2022Article
- Participant experiences using novel home-based blood collection device for viral load testing in HIV cure trials with analytical treatment interruptionsHIV research & clinical practice · 2022Article
- Acceptability of Human Papilloma Virus Self-Sampling for Cervical Cancer Screening in a Cohort of Patients from Romania (Stage 2).Journal of clinical medicine · 2022Article
- Preliminary Acceptability of a Home-Based Peripheral Blood Collection Device for Viral Load Testing in the Context of Analytical Treatment Interruptions in HIV Cure Trials: Results from a Nationwide Survey in the United States.Journal of personalized medicine · 2022Article
- Clinical follow-up practices after cervical cancer screening by co-testing: A population-based study of adherence to U.S. guideline recommendations.Preventive medicine · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors.
Funding
Abstract
objectiveWe explored patient perspectives after a positive human papillomavirus (HPV) self-sampling result to describe experiences and information needs for this home-based screening modality. MATERIALS AND
methodsWe recruited women who tested high-risk (hr) HPV positive during a pragmatic trial evaluating mailed hrHPV self-sampling kits as an outreach strategy for women overdue for Pap screening in a U.S. integrated health care system. Telephone interviews were conducted from 2014 to 2017. Five independent coders analyzed transcripts using iterative content analysis.
resultsForty-six women (61% of invited; median age 55.5 years) completed a semistructured interview. Six themes emerged: (1) convenience of home-based screening, (2) intense feelings and emotions after receiving positive kit results, (3) importance of seeing provider and discussing kit results, (4) information seeking from various sources, (5) confusion about purpose and meaning of HPV versus Pap tests, and (6) concern that HPV self-sampling is inaccurate when the subsequent Pap test is normal.
conclusionsAlthough women liked the kit's convenience, discussion about discordant home HPV and in-clinic Pap results led them to question the accuracy of HPV self-sampling. Patient-provider communication around home HPV kits is more complex than for reflex or cotesting because clinician-collected Pap results are unknown at the time of the positive kit result. Patients need education about differences between HPV and Pap tests and how they are used for screening and follow-up. To reassure patients and keep them interested in self-sampling, education should be provided at multiple time points during the screening process.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.