Evidence map›Paper›PMID 30472318›Full record

Trial reportJournal of pain and symptom management2019

FAmily-CEntered (FACE) Advance Care Planning Among African-American and Non-African-American Adults Living With HIV in Washington, DC: A Randomized Controlled Trial to Increase Documentation and Health Equity.

Maureen E Lyon, Leah Squires, Lawrence J D'Angelo, Debra Benator, Rachel K Scott, Isabella H Greenberg, Patricia Tanjutco, Melissa M Turner, Tara E Weixel, Yao I Cheng and 1 more

Registry-linked trialOpen access · bronzeAbstract readRandomized Controlled Trial
PubMed Full text at PMC Publisher
In one paragraph

Trial report in Journal of pain and symptom management, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT01775436 (Palliative Care in People Living With HIV/AIDS), which is not on this map. Cited by 22 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
22citing papers in PubMed, 2 pooled it
3.7field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT01775436 nacompletednot on this map

Palliative Care in People Living With HIV/AIDS: Integrating Into Standard of Care

TypeinterventionalSponsorChildren's National Research InstituteRan2013 to 2017Enrolled444ConditionsHIVArmsFAmily-CEntered Advance Care Planning, Healthy Living Control
3 · Its place in the literature

Who cites it

22 citing papers in PubMed, 2 syntheses or guidelines pooled it, 32 citations in OpenAlex.

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  19. A mixed-methods exploration of faith, spirituality, and health program interest among older African Americans with HIV.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 4 institutions in 1 country.

Maureen E LyonDivision of Adolescent and Young Adult Medicine, Children's National, Center for Translational Science/Children's Research Institute, Washington, DC, USA; George Washington University School of Medicine and Health Sciences, Washington, DC. Electronic address: mlyon@childrensnational.org.
Leah SquiresWashington DC Veterans Affairs Medical Center, Washington, DC.
Lawrence J D'AngeloDivision of Adolescent and Young Adult Medicine, Children's National, Center for Translational Science/Children's Research Institute, Washington, DC, USA; George Washington University School of Medicine and Health Sciences, Washington, DC.
Debra BenatorGeorge Washington University School of Medicine and Health Sciences, Washington, DC; Washington DC Veterans Affairs Medical Center, Washington, DC.
Rachel K ScottMedStar: Health Research Institute and Washington Hospital Center; George Washington University Milken School of Public Health, Washington, DC, USA.
Isabella H GreenbergDivision of Adolescent and Young Adult Medicine, Children's National, Center for Translational Science/Children's Research Institute, Washington, DC, USA.
Patricia TanjutcoMedStar: Health Research Institute and Washington Hospital Center; George Washington University Milken School of Public Health, Washington, DC, USA.
Melissa M TurnerWashington DC Veterans Affairs Medical Center, Washington, DC.
Tara E WeixelOffice of the Clinical Director, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA.
Yao I ChengDivision of Adolescent and Young Adult Medicine, Children's National, Center for Translational Science/Children's Research Institute, Washington, DC, USA.
Jichuan WangDivision of Adolescent and Young Adult Medicine, Children's National, Center for Translational Science/Children's Research Institute, Washington, DC, USA; George Washington University School of Medicine and Health Sciences, Washington, DC.
Children's National · USMilken Institute · USGeorge Washington University · USNational Institutes of Health · US

Funding

SWG 2: Cure Research Scientific Working GroupP30AI117970 · NIAID · GEORGE WASHINGTON UNIVERSITY · PI Italo Mocchetti · 2015 to 2026
$29.6M
CTSA INFRASTRUCTURE FOR PEDIATRIC RESEARCHUL1RR031988 · NCRR · CHILDREN'S RESEARCH INSTITUTE · PI JOSEPH, JILL G · 2010 to 2011
$8.2M
Palliative Care in People Living with AIDS: Integrating into Standard of CareR01NR014052 · NINR · CHILDREN'S RESEARCH INSTITUTE · PI LYON, MAUREEN ELLEN · 2012 to 2016
$2.2M
NCRR NIH HHS UL1 RR031988NIAID NIH HHS P30 AI117970NINR NIH HHS R01 NR014052
6 · The paper itself

Abstract

contextNo prospective studies address disease-specific advance care planning (ACP) for adults living with HIV/AIDS.

objectiveTo examine the efficacy of FAmily-CEntered (FACE) ACP in increasing ACP and advance directive documentation in the medical record.

methodsLongitudinal, two-arm, randomized controlled trial with intent-to-treat design recruited from five hospital-based outpatient HIV clinics in Washington, DC. Adults living with HIV and their surrogate decision-makers (N = 233 dyads) were randomized to either an intensive facilitated two-session FACE ACP (Next Steps: Respecting Choices goals of care conversation and Five Wishes advance directive) or healthy living control (conversations about developmental/relationship history and nutrition).

resultsPatients (n = 223) mean age: 51 years, 56% male, 86% African-American. One hundred ninety-nine dyads participated in the intervention. At baseline, only 13% of patients had an advance directive. Three months after intervention, this increased to 59% for the FACE ACP group versus 17% in the control group (P < 0.0001). Controlling for race, the odds of having an advance directive in the medical record in the FACE ACP group was approximately seven times greater than controls (adjusted odds ratio = 6.58, 95% CI: 3.21-13.51, P < 0.0001). Among African-Americans randomized to FACE, 58% had completed/documented advance directives versus 20% of controls (P < 0.0001).

conclusionsThe FACE ACP intervention significantly improved ACP completion and advance directive documentation in the medical record among both African-American and non-African-American adults living with HIV in Washington, DC, providing health equity in ACP, which can inform best practices.

Indexed as

Advance Care PlanningDocumentationHealth EquityHIV InfectionsAdolescentAdultAdvance DirectivesAgedAged, 80 and overBlack or African AmericanFemaleHumansLongitudinal StudiesMaleMiddle AgedYoung Adultadvanced care planningadvanced directiveAfrican-Americandecision-makingelectronic health recordsHIV

Identifiers

PMID30472318
PMCPMC6382515
OpenAlexW2901624061

What OpenQuestion holds

Textmetadata
LicenceTDM
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.