ArticlePediatric pulmonology2019
Pediatric patients with home mechanical ventilation: The health services landscape.
Article in Pediatric pulmonology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed.
- The Impact of Rurality on Durable Medical Equipment Access and Discharge Planning for Tracheostomy and Ventilation Care in Nebraska.Laryngoscope investigative otolaryngology · 2026Article
- HOME, the heart of healing: advancing patient safety beyond the hospital.BMJ open quality · 2026Article
- The Impact of COronaVIrus Disease of 2019 Pandemic on Home Health Nursing Availability in Pediatric Patients After Tracheostomy Placement.Pediatric pulmonology · 2025Article
- Discharge Practice Variability in Pediatric Chronic Home Invasive Ventilation.Pediatric pulmonology · 2025Article
- Transitioning medically complex infants home: lessons learned from quality improvement efforts.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Care Utilization for Acute Respiratory Infections in Children Requiring Invasive Long-Term Mechanical Ventilation.Pediatric pulmonology · 2025Article
- Challenges and recommendations for advancing respite care for families of children and youth with special health care needs: A qualitative exploration.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- The care burden for technology-dependent children with long-term home ventilation increases along with the improvement of their motor functions.European journal of pediatrics · 2024Article
- Optimizing recovery following critical illness: A systematic review of home-based interventions.Home health care management & practice · 2023Article
- At-home end-tidal carbon dioxide measurement in children with invasive home mechanical ventilation.Pediatric pulmonology · 2022Article
- Qualitative indications for tracheostomy and chronic mechanical ventilation in patients with severe bronchopulmonary dysplasia.Journal of perinatology : official journal of the California Perinatal Association · 2021Article
- Cross-sectional survey on home mechanical ventilator use: major deficiencies in a home care system in South Korea.Journal of thoracic disease · 2021Article
- Home nursing for children with home mechanical ventilation in the United States: Key informant perspectives.Pediatric pulmonology · 2020Article
- Discharge Practices for Children with Home Mechanical Ventilation across the United States. Key-Informant Perspectives.Annals of the American Thoracic Society · 2020Article
- "This Is How Hard It Is". Family Experience of Hospital-to-Home Transition with a Tracheostomy.Annals of the American Thoracic Society · 2020Article
- Attributable Delay of Discharge for Children with Long-Term Mechanical Ventilation.The Journal of pediatrics · 2019Article
- Parent education programs for children assisted by invasive mechanical ventilation: A scoping review.Journal of pediatric nursingArticle
- Relationship Between Tracheal Suctioning Catheter Motion and Secretion Amount Based on Viscosity.SAGE open nursingArticle
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
objectiveChildren with invasive home mechanical ventilation (HMV) are a growing population with complex health service needs. Single institution studies provide insight into successful program structures and outcomes. Our study objectives were to assess health service structures, providers, and programs caring for this population throughout the U.S., and to understand barriers to high-quality care.
designUsing purposeful sampling with capture-recapture and snowball sampling methods, we identified key informants for care of the U.S. pediatric HMV population. Informants received web-based surveys with two reminders. Survey domains included respondent characteristics, HMV team composition, and barriers to care.
resultsSurvey response was 71% with 101 completed. Respondents caring for patients in 45 states included physicians (61%), nurses (20%), therapists (12%), case managers (4%), and social workers (2%). Half (53%) of physicians were fellowship trained, most commonly pulmonology (22%) and critical care medicine (13%). The majority (65%) of providers described a dedicated HMV service. The majority (61%) of respondents from a HMV service provided both inpatient and outpatient care. Nearly all respondents (96%) described an inadequate supply of home nurses and 88% reported inadequate respite facilities.
conclusionsChildren with HMV assistance receive care from a diverse group of providers with varied team structure. Heterogeneity may reflect patient diversity and provider interest, increasing efficacy but challenging standardization nationwide. Despite team structure variability, similar home care difficulties were universally experienced. Data suggest that the home nursing shortage is a national impediment to quality and efficient discharge with limited community-based support for this vulnerable population.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.