ArticleJournal of the American Geriatrics Society2019
Multifactorial Examination of Caregiver Burden in a National Sample of Family and Unpaid Caregivers.
Article in Journal of the American Geriatrics Society, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06364228 (Intranasal Oxytocin Intervention for Caregivers to Persons With Dementia), which is not on this map. Cited by 126 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Intranasal Oxytocin Intervention for Caregivers to Persons With Dementia
Who cites it
126 citing papers in PubMed, 3 syntheses or guidelines pooled it, 227 citations in OpenAlex.
- mHealth To Promote Monitoring and Self-Regulation Among Caregivers of People With Dementia: A Systematic Review.PsyCh journal · 2026Pooled it
- Exploring concepts and trends in informal caregiver burden: systematic review using citation network and content analysis.Aging clinical and experimental research · 2023Pooled it
- Determinants of overburdening among informal carers: a systematic review.BMC geriatrics · 2020Pooled it
- Trial
- Professional and family caregivers' perceptions of death literacy in end-of-life home care: a qualitative study.BMJ open · 2026Article
- Adult day services, leisure time satisfaction, and psychosocial well-being among dementia caregivers.The Gerontologist · 2026Article
- Psychological Burden Among Informal Caregivers of Cirrhosis and Liver Transplant Patients: A Cross-Sectional Study Using the Burden Scale for Family Caregivers.Journal of evaluation in clinical practice · 2026Article
- Family Carer Involvement in Dementia Care Research: A Scoping Review and Expert Consultation.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Role Captivity in Former Dementia Caregivers: Constrained Choice, Role Engulfment and Caregiver Wellbeing in Ageing Care.Geriatrics (Basel, Switzerland) · 2026Article
- Characterizing stressors, coping strategies, and intervention preferences related to brain health among cardiac arrest survivors and their family caregivers.Aging & mental health · 2026Article
- Understanding the Lived Experience and Bereavement of Caregivers of People with Alzheimer's Disease: A Mixed-Methods Study Protocol.Healthcare (Basel, Switzerland) · 2026Article
- Beliefs about Levels of Care Responsibility for Older Adults in Need: Differences by Relationship and the Presence of Dementia.Alzheimer's & dementia. Behavior & socioeconomics of aging · 2026Article
- Evaluating the Applicability of the Self-Assessment Tool for Family Caregivers (SSA-PA) in Care Counseling According to Section 45 of the German Social Code (SGB XI): A Mixed-Methods Study.Healthcare (Basel, Switzerland) · 2026Article
- Demographic predictors of caregiving and caregiver stress: results from the HCHS/SOL sociocultural ancillary study.The Gerontologist · 2026Article
- Adaptation and psychometric validation of treatment burden questionnaire for caregivers of older adults with diabetes and dementia.Aging & mental health · 2026Article
- Stress and coping among dual caregivers in China: a grounded theory study of intergenerational caregiving.International journal of public health · 2026Article
- Dementia Severity Associated With Unmet Caregiving Needs During Skilled Home Health Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- When Missing Out Matters: Associations Between Social Activity Restriction and Caregiver Burden.Journal of the American Geriatrics Society · 2026Article
- Psychological distress and caregiver burden among informal caregivers of patients with earthquake-related and stroke-related dependency: a comparative study.Frontiers in psychiatry · 2026Article
- Developing a screening-guided volunteer-supported in-home respite services model: a modified online Delphi study.BMC health services research · 2025Article
66 more citing papers are in PubMed but not listed here.
Corrections and comments
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Authors and funding
4 authors at 3 institutions in 1 country.
Funding
Abstract
objectivesTo examine factors associated with caregiver burden from a multifactorial perspective by examining caregiver and care recipient characteristics and a full range of caregiving tasks.
designNationally representative surveys of community-dwelling older adults and their family caregivers residing in the United States.
setting2011 National Health and Aging Trends Study and National Study of Caregiving.
participantsCommunity-dwelling older adults and their family caregivers. MEASUREMENTS: Caregiver burden, comprising emotional, physical, and financial difficulties associated with caregiving.
resultsAn estimated 14.9 million caregivers assisted 7.6 million care recipients. More than half of caregivers reported burden related to caregiving. In a multivariable regression model, caregivers who assisted with more activities of daily living and instrumental activities of daily living, health management tasks, and health system logistics were more likely to experience burden, as were female caregivers, adult child caregivers, caregivers in poor health, caregivers with anxiety symptoms, and those using respite care. Dementia was the only care recipient characteristic associated with burden.
conclusionCaregiver characteristics and provision of caregiving tasks determine caregiver burden more than care recipient characteristics. Absence of an association between type of a care recipient's chronic conditions and burden, except for dementia, suggests that the tasks that caregivers who assist older adults with a variety of health conditions undertake shape the experience of caregiving. J Am Geriatr Soc 67:277-283, 2019.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.